A Collection of Clinical and Epidemiologic Data Combined With Tissue and Blood From Patients With a Diagnosis of Neuroendocrine Tumors

Status:	Recruiting
Conditions:	Cancer, Cancer, Brain Cancer, Pancreatic Cancer
Therapuetic Areas:	Oncology
Healthy:	No
Age Range:	18 - Any
Updated:	8/5/2018
Start Date:	August 2008
End Date:	August 2020
Contact:	Diane Reidy-Lagunes, MD
Phone:	646-888-4185

Gastroenteropancreatic and Unknown Primary Neuroendocrine Registry A Collection of Clinical and Epidemiologic Data Combined With Tissue and Blood From Patients With a Diagnosis of Neuroendocrine Tumors

The purpose of this study is to establish a neuroendocrine tumor registry. A registry is a
collection of information. To create this registry, the investigators would like to get
information, blood and tumor samples from people with neuroendocrine tumors. By collecting
this information and material, the investigators are hoping to learn more about the genetic
causes of neuroendocrine tumors. All of this will help us to better understand neuroendocrine
cancer, so the investigators can find better ways to treat and diagnose this disease. DNA
will be taken from the blood samples and will be used in future studies. This will be an
important resource from which the investigators can study genes that may be related to a
higher risk of neuroendocrine tumors.

The information collected will include medical information, family history of cancer and your
answers to questions about how the cancer affects quality of life.

Inclusion Criteria:

- Diagnosis of gastroenteropancreatic neuroendocrine tumors or neuroendocrine tumors of
unknown primary

- Willing to donate blood samples

- >= 18years old

- Patients may have received prior hormonal therapy, cytotoxic therapy, irradiation,
immunotherapy or surgical therapy

Exclusion Criteria:

- Have any condition, which in the opinion of the primary MSKCC clinician or
investigators precludes their ability to provide informed consent

We found this trial at

sites

Memorial Sloan-Kettering Cancer Center at Commack

650 Commack Rd
Commack, New York 11725

(631) 623-4000