Perceptions Regarding Investigational Screening for Memory Problems in Primary Care

The Health Belief Model was used to explore the public's acceptance or enthusiasm for early
recognition of dementia. Based on this model, prior research and clinical experiences, and a
systematic literature review, the PRISM-PC instrument was developed. The PRISM-PC items seek
to capture both the patient's acceptance of dementia screening and the patient's perception
of potential harms and benefits of such screening. The instrument includes questions
regarding screening by performance-based questionnaires, blood tests, or brain imaging.

The PRISM-PC instrument includes 50 items that are organized into 8 sets of questions that
cover the following areas:

A) Prior experience with AD (5 items) B) Acceptance of screening for AD (6 items) C)
Acceptance of screening for other conditions (2 items) D) Benefits of screening for AD (9
items) E) Stigma of screening for AD (10 items) F) Impact of screening for AD on
independence (6 items) G) Suffering of screening for AD (4 items) H) Demographics (7 items)
Excluding section A and H (prior experience with AD and demographics), each item of the six
other sections is rated on a 5-point Likert scale (strongly agree, agree, don't know,
disagree, and strongly disagree).

Based on the previous PRISM-PC pilot study (a survey response rate of 80%) and the Dementia
screening and diagnosis study (screening acceptance rate of 90%, positive dementia screening
rate of 20% among participants aged 70 and older, and dementia diagnostic acceptance rate of
50%), a total of 1,500 volunteers will be approached. A random selection of 200 participants
will be re-administered the questionnaire within one week to test the short-term temporal
stability of their responses (test-retest).

Inclusion Criteria:

- Aged 65 and older

- At least one office visit to their primary care physician within the last year

- No chart-based diagnosis of dementia or memory problem

- Willing to sign a consent form to participate in the study

Exclusion Criteria:

- Does not speak English

- Too hearing-impaired to hear the informed consent statement or the survey

- Severe mental illness based on the patient's electronic medical charts