Community Cancer Centers Pilot Patient Survey
| Status: | Completed |
|---|---|
| Conditions: | Cancer |
| Therapuetic Areas: | Oncology |
| Healthy: | No |
| Age Range: | 21 - 99 |
| Updated: | 4/6/2019 |
| Start Date: | November 3, 2008 |
| End Date: | May 11, 2015 |
NCI Community Cancer Center Pilot Program Patient Survey
Background:
- Studies suggest that cancer patients diagnosed and treated in a facility with
multi-specialty care and clinical research may live longer and have a better quality of
life than patients treated elsewhere.
- The NCI Community Cancer Centers Pilot Program (NCCCP) is a 3-year program to test the
concept of a national network of community cancer centers to expand cancer research and
deliver the most advanced cancer care to Americans in their own communities.
- The pilot program includes a survey of cancer patients receiving care at the pilot
sites.
Objectives:
- To gain an understanding of the experiences of adult patients who receive services at
the NCCCP pilot sites and assess if and how their experience changes over the study
period. Data about the following are collected:
- Patients information needs and awareness of the NCCCP program
- Clinical trials experience
- Access to health care
- Perspectives on patient-provider communication
- Experiences with patient navigation, self-management, medical decision-making and
survivorship
- Satisfaction with care and quality of life
Eligibility:
- Patients 21 years or older at the time of diagnosis
- Treatment at the cancer center for at least 3 months since July 1, 2007
Design:
- Participants complete a 25-minute questionnaire covering the care they received at their
cancer center, their experience with making medical appointments and how long they
waited to see the doctor. The survey includes information on the following:
- Services at the cancer center
- Getting needed care
- Assistance for patients and their families
- Communication with the cancer care team
- Clinical trials
- Care after finishing treatment
- Evaluation of care
- Health and medical history
- Background information (demographics)
- Studies suggest that cancer patients diagnosed and treated in a facility with
multi-specialty care and clinical research may live longer and have a better quality of
life than patients treated elsewhere.
- The NCI Community Cancer Centers Pilot Program (NCCCP) is a 3-year program to test the
concept of a national network of community cancer centers to expand cancer research and
deliver the most advanced cancer care to Americans in their own communities.
- The pilot program includes a survey of cancer patients receiving care at the pilot
sites.
Objectives:
- To gain an understanding of the experiences of adult patients who receive services at
the NCCCP pilot sites and assess if and how their experience changes over the study
period. Data about the following are collected:
- Patients information needs and awareness of the NCCCP program
- Clinical trials experience
- Access to health care
- Perspectives on patient-provider communication
- Experiences with patient navigation, self-management, medical decision-making and
survivorship
- Satisfaction with care and quality of life
Eligibility:
- Patients 21 years or older at the time of diagnosis
- Treatment at the cancer center for at least 3 months since July 1, 2007
Design:
- Participants complete a 25-minute questionnaire covering the care they received at their
cancer center, their experience with making medical appointments and how long they
waited to see the doctor. The survey includes information on the following:
- Services at the cancer center
- Getting needed care
- Assistance for patients and their families
- Communication with the cancer care team
- Clinical trials
- Care after finishing treatment
- Evaluation of care
- Health and medical history
- Background information (demographics)
BACKGROUND:
The NCI Community Cancer Centers Pilot Program (NCCCP), http://ncccp.cancer.gov, is a
three-year pilot program to test the concept of a national network of community cancer
centers to expand cancer research and deliver the latest, most advanced cancer care to a
greater number of Americans in the communities in which they live.The pilot program is
designed to encourage the collaboration of private-practice medical, surgical, and radiation
oncologists, with close links to NCI research and to the network of 63 NCI-designated cancer
Centers principally based at large research universities. NCI contracted with RTI
International (ww.rti.org) to conduct a comprehensive evaluation of the NCCCP pilot program
using multiple methodologies, including a survey of cancer patients receiving care at the
pilot sites.
OBJECTIVES:
The goal of the patient survey is to gain an understanding of the clinical experiences of
adult patients who receive services at the NCCCP pilot sites and to assess if and how their
experience change over the pilot period. Specifically, the survey instrument seeks to collect
data about patients information needs and awareness of the NCCCP program; clinical trials
experience; access to health care; perspectives on patient-provider communication; and
experiences with patient navigation, self-management, medical decision making, and
survivorship; as well as their satisfaction with care and quality of life.
ELIGIBILITY:
Each of the ten participating Centers will create a de-identified electronic file of all
patients who meet the inclusion criteria:
1. living patients who are listed on a NCCCP site s cancer registry;
2. cancer patients age 21 years and older at the time of sampling; and
3. cancer patients who had 1or more cancer treatment outpatient visits at their Cancer
Center since July 1, 2007 for the 1st round of data collection, and since July 1, 2009
for the second data collection. Center will create this file using their cancer registry
and assign each individual a unique identification (ID) number.
DESIGN:
Each file containing the universe of eligible patients will be sent to RTI, from which 475
patients from each Center s list will be randomly selected. RTI will send a list back to each
Center indicating which 475 patient IDs were selected for inclusion in the survey. The Center
staff will match selected patient back to their master list using the Study ID number to
identify patients included in the survey. RTI will deliver 475 pre-paid patient survey
packets to each Center. The packets will include all required items except a Patient
Notification Letter, which is a cover letter introducing the study and provides instructions
on how to complete the survey. To protect patient privacy, Center staff will be responsible
for generating the mailing labels and personalized Patient Notification Letter, and mailing
the packets.
The NCI Community Cancer Centers Pilot Program (NCCCP), http://ncccp.cancer.gov, is a
three-year pilot program to test the concept of a national network of community cancer
centers to expand cancer research and deliver the latest, most advanced cancer care to a
greater number of Americans in the communities in which they live.The pilot program is
designed to encourage the collaboration of private-practice medical, surgical, and radiation
oncologists, with close links to NCI research and to the network of 63 NCI-designated cancer
Centers principally based at large research universities. NCI contracted with RTI
International (ww.rti.org) to conduct a comprehensive evaluation of the NCCCP pilot program
using multiple methodologies, including a survey of cancer patients receiving care at the
pilot sites.
OBJECTIVES:
The goal of the patient survey is to gain an understanding of the clinical experiences of
adult patients who receive services at the NCCCP pilot sites and to assess if and how their
experience change over the pilot period. Specifically, the survey instrument seeks to collect
data about patients information needs and awareness of the NCCCP program; clinical trials
experience; access to health care; perspectives on patient-provider communication; and
experiences with patient navigation, self-management, medical decision making, and
survivorship; as well as their satisfaction with care and quality of life.
ELIGIBILITY:
Each of the ten participating Centers will create a de-identified electronic file of all
patients who meet the inclusion criteria:
1. living patients who are listed on a NCCCP site s cancer registry;
2. cancer patients age 21 years and older at the time of sampling; and
3. cancer patients who had 1or more cancer treatment outpatient visits at their Cancer
Center since July 1, 2007 for the 1st round of data collection, and since July 1, 2009
for the second data collection. Center will create this file using their cancer registry
and assign each individual a unique identification (ID) number.
DESIGN:
Each file containing the universe of eligible patients will be sent to RTI, from which 475
patients from each Center s list will be randomly selected. RTI will send a list back to each
Center indicating which 475 patient IDs were selected for inclusion in the survey. The Center
staff will match selected patient back to their master list using the Study ID number to
identify patients included in the survey. RTI will deliver 475 pre-paid patient survey
packets to each Center. The packets will include all required items except a Patient
Notification Letter, which is a cover letter introducing the study and provides instructions
on how to complete the survey. To protect patient privacy, Center staff will be responsible
for generating the mailing labels and personalized Patient Notification Letter, and mailing
the packets.
- INCLUSION CRITERIA:
- Living patients who are listed on an NCCCP site s cancer registry
- Cancer patients age 21 years and older at the time of sampling
- Cancer patients who had 1 or more cancer treatment outpatient visits at their cancer
center since July 1, 2007 for the first survey round and since July 1, 2009 for the
second round of the survey.
EXCLUSION CRITERIA:
- Persons under the age of 21 at the time of sampling.
- Persons not in the cancer registry
- Cancer patients without at least 1 or more cancer treatment outpatient visits since
July 1, 2007 for the first survey round and since July 1, 2009 for the second round of
the survey.
- Cancer patients who are deceased at the time of sampling
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