Validation of the Sickle Cell Disease Pain Burden Interview
| Status: | Completed |
|---|---|
| Conditions: | Chronic Pain, Anemia |
| Therapuetic Areas: | Hematology, Musculoskeletal |
| Healthy: | No |
| Age Range: | 7 - 21 |
| Updated: | 7/16/2013 |
| Start Date: | December 2008 |
| End Date: | December 2012 |
| Contact: | William T Zempsky, MD |
| Email: | wzempsk@ccmckids.org |
| Phone: | 860-545-9041 |
The purpose of this study is to validate a brief survey tool, the SCD Pain Burden Interview
(SCPBI), which can be used in the clinical and/or research settings to assess the impact of
pain on children with sickle cell disease.
Inclusion Criteria:
- Documented sickle cell disease
- 7 years old or greater
- Primary caregiver present at the first visit for children < 18 years of age
Exclusion Criteria:
- Primary language spoken other than English
- Patient is in acute pain episode at time of initial visit
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Connecticut Children's Medical Center Connecticut Children’s Medical Center is a nationally recognized, 187-bed not-for-profit children’s...
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