Caregiver Assessments of the Quality of Home Hospice Care
| Status: | Active, not recruiting |
|---|---|
| Conditions: | Cancer, Cancer |
| Therapuetic Areas: | Oncology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 8/16/2018 |
| Start Date: | April 2009 |
| End Date: | April 2019 |
Caregiver Assessments of the Quality of Home Hospice Care: A Comparison Across 3 Ethnic Groups (A Preliminary Study)
The Objectives are to administer the Family Evaluation of Hospice Care (FEHC) questionnaire
and The Texas Revised Inventory of Grief (TRIG) to caregivers previously enrolled into the
parent grant and conduct supplemental analyses to:
1. examine cross-ethnic differences in the caregivers' quality of hospice care assessments.
2. investigate the association between parenteral hydration status of the patient and the
quality of care assessments provided by the caregivers after death.
3. examine the association between levels of grief (as measured by the TRIG) and the
quality of hospice care assessments provided by the caregiver.
and The Texas Revised Inventory of Grief (TRIG) to caregivers previously enrolled into the
parent grant and conduct supplemental analyses to:
1. examine cross-ethnic differences in the caregivers' quality of hospice care assessments.
2. investigate the association between parenteral hydration status of the patient and the
quality of care assessments provided by the caregivers after death.
3. examine the association between levels of grief (as measured by the TRIG) and the
quality of hospice care assessments provided by the caregiver.
After the death of their loved-ones, caregivers will be asked to report on the care received
by their care recipient and the quality of practical and emotional care provided to them by
hospice by completing the 25-minute FEHC questionnaire over the phone. Caregivers will also
be asked 16 additional questions to assess their attitudes and beliefs about hydration at the
end of life, and a brief questionnaire to assess past and current levels of grief (TRIG). The
additional questions on hydration and grief can easily be completed in less than 10 minutes
over the phone. The entire interview should take no more than 35 minutes to complete.
Bereaved caregivers who have participated in the parent grant and have lost their loved one
within 3-23 months will be mailed a letter from Drs. Bruera and Torres inviting them to
participate in the voluntary supplemental after-death survey. The letter will include a brief
description of the research study and appropriate contact information for the caregiver to
call if she/he is interested in participating. The letters then will be followed up by a
phone call from Dr. Torres to verify receipt of the letter. If the caregivers express their
interest in participating in the study, they will be asked a few screening questions over the
phone to verify their eligibility. Once found eligible for the study, a telephone verbal
consent will be obtained.
Dr. Isabel Torres will conduct the phone interviews with 128 primary caregivers who had
previously completed the parent grant protocol.
by their care recipient and the quality of practical and emotional care provided to them by
hospice by completing the 25-minute FEHC questionnaire over the phone. Caregivers will also
be asked 16 additional questions to assess their attitudes and beliefs about hydration at the
end of life, and a brief questionnaire to assess past and current levels of grief (TRIG). The
additional questions on hydration and grief can easily be completed in less than 10 minutes
over the phone. The entire interview should take no more than 35 minutes to complete.
Bereaved caregivers who have participated in the parent grant and have lost their loved one
within 3-23 months will be mailed a letter from Drs. Bruera and Torres inviting them to
participate in the voluntary supplemental after-death survey. The letter will include a brief
description of the research study and appropriate contact information for the caregiver to
call if she/he is interested in participating. The letters then will be followed up by a
phone call from Dr. Torres to verify receipt of the letter. If the caregivers express their
interest in participating in the study, they will be asked a few screening questions over the
phone to verify their eligibility. Once found eligible for the study, a telephone verbal
consent will be obtained.
Dr. Isabel Torres will conduct the phone interviews with 128 primary caregivers who had
previously completed the parent grant protocol.
Inclusion Criteria:
1. Bereaved family caregivers who completed their participation in the parent protocol
(2006-0494) and have lost their loved one within 3-23 months.
2. Caregivers who participated in the parent grant met the inclusion/exclusion criteria
of the parent grant.
Exclusion Criteria:
1. Bereaved family caregivers who did not complete their participation in the parent
protocol or any other caregiver who was never enrolled in the parent protocol
(2006-0494).
We found this trial at
1
site
1515 Holcombe Blvd
Houston, Texas 77030
Houston, Texas 77030
713-792-2121
University of Texas M.D. Anderson Cancer Center The mission of The University of Texas MD...
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