Characteristics of Adult Patients With Recessive Dystrophic Epidermolysis Bullosa
| Status: | Completed |
|---|---|
| Conditions: | Skin and Soft Tissue Infections |
| Therapuetic Areas: | Dermatology / Plastic Surgery |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 5/5/2014 |
| Start Date: | April 2009 |
| End Date: | January 2015 |
| Contact: | Emily Gorell, MS |
| Email: | egorell@stanford.edu |
| Phone: | (650) 721-7166 |
Recessive dystrophic epidermolysis bullosa (RDEB) is a severe inherited blistering disease
caused by the absence of type VII collagen. Patients with RDEB develop large, severely
painful blisters and open wounds from minor trauma to their skin. We are screening RDEB
subjects to determine additional characteristics of patients who survive to adulthood.
caused by the absence of type VII collagen. Patients with RDEB develop large, severely
painful blisters and open wounds from minor trauma to their skin. We are screening RDEB
subjects to determine additional characteristics of patients who survive to adulthood.
Inclusion Criteria:1. Clinical diagnosis of RDEB by local dermatologist. 2. 18 years of
age or more and willing to give consent.
Exclusion Criteria:1. Medical instability limiting ability to travel to Stanford
University Medical Center.
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