Observational Study to Assess Natural History in Cockayne Syndrome Patients
| Status: | Archived |
|---|---|
| Conditions: | Dermatology |
| Therapuetic Areas: | Dermatology / Plastic Surgery |
| Healthy: | No |
| Age Range: | Any |
| Updated: | 7/1/2011 |
| Start Date: | September 2009 |
| End Date: | February 2011 |
An Observational Study to Assess the Natural History Including Growth and Hearing in Patients With Cockayne Syndrome
This is an Observational Study of children under the age of 11 diagnosed with Cockayne
Syndrome to assess the natural progression of Cockayne Syndrome disease, with special
attention to hearing and physical changes in length or height, weight, head circumference,
and arm span during standard treatment.
The primary analytical objective is to determine the rate of linear growth over a 6-month
period in children < 2 years of age and over a 12-month period in children ≥ 2 years of age.
We found this trial at
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New York University Langone Medical Center NYU NYU Langone Medical Center, a world-class, patient-centered, integrated,...
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