Investigating the Needs of Childhood Cancer Survivors: The Unreported Experience

Status:	Archived
Conditions:	Cancer, Cancer
Therapuetic Areas:	Oncology
Healthy:	No
Age Range:	Any
Updated:	7/1/2011
Start Date:	April 2010
End Date:	November 2011

This feasibility study will determine the psychometric adequacy of a newly developed
instrument - Needs Assessment Survey of Adult Childhood Cancer Survivors. Additionally the
study will explore the feasibility of selected study methods -- sample selection, length of
time to complete recruitment, and response rates - in order to inform a larger national
periodic survey of adult survivors' health related needs

This study will focus on the following primary and secondary objectives:

1. Examine the construct validity, short-term stability, internal consistency and
item-response performance of a health-related needs assessment self-report instrument
for adult childhood cancer survivors

2. Inform future sample stratification by oversampling minority and rural-dwelling
survivors to enhance the heterogeneity of the respondent pool;

3. Describe the met and unmet health-related needs and their covariates in a large,
stratified, random sample of childhood cancer survivors;

4. Evaluate the sample selection methods, length of time to complete recruitment, and
response rates in the study sample.

We found this trial at

sites

Fred Hutchinson Cancer Research Center

1100 Fairview Avenue North
Seattle, Washington 98109

(206) 667-5000