A 5-year, Prospective, Non-interventional, Multicenter Registry in Sickle Cell Disease (SCD) Patients



Status:Recruiting
Conditions:Anemia
Therapuetic Areas:Hematology
Healthy:No
Age Range:2 - Any
Updated:7/11/2015
Start Date:January 2010
End Date:January 2017
Contact:Novartis Pharmaceuticals
Phone:+1 800 340 6843

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A 5-year, Prospective, Non-interventional, Multicenter Registry in Sickle Cell Disease Patients

A long term observational study in sickle cell disease will enhance the understanding of the
disease patterns, current transfusion practices, treatments and outcomes in sickle cell
disease.


Inclusion Criteria:

- Male or female patients with HbSS, HbS/beta-thalassemia and HbSC

- Age > 2 years old.

- Written informed consent by the patient or legal guardians, and pediatric assent
where indicated.

Exclusion Criteria:

- Patients with Sickle Cell trait (HbAS) are not eligible for the study

- Patient or legal guardians unable or unwilling to give consent, or pediatric assent
where indicated.
We found this trial at
42
sites
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3333 Burnet Avenue # Mlc3008
Cincinnati, Ohio 45267
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Cincinnati, OH
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6405 N Federal Hwy # 300
Fort Lauderdale, Florida 33308
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200 North Park Street
Kalamazoo, Michigan 49007
(269) 382-2500
West Michigan Cancer Center In 1994, Borgess Health Alliance and Bronson Healthcare Group opened the...
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Kalamazoo, MI
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2401 Gillham Rd
Kansas City, Missouri 64108
(816) 234-3000
Children's Mercy Hospital Children's Mercy Hospitals and Clinics continues redefining pediatric medicine throughout the Midwest...
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Kansas City, MO
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3100 SW 62nd Ave
Miami, Florida 33155
(305) 666-6511
Miami Children's Hospital Welcome to Miami Children
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Miami, FL
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1400 South Orange Avenue
Orlando, Florida 32806
(407) 648-3800
M.D. Anderson Cancer Center at Orlando For more than twenty years, our cancer center has...
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Orlando, FL
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Akron, OH
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Boston, Massachusetts 02118
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Boston, MA
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Boston, Massachusetts 02115
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Brooklyn, NY
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4802 10th Ave
Brooklyn, New York 11219
(718) 283-6000
Maimonides Medical Center At 103 years old, Maimonides Medical Center remains a vital and thriving...
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Brooklyn, NY
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Charleston, SC
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Charlotte, North Carolina 28204
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Chicago, IL
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Clinton, Maryland 20735
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Columbia, MO
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Columbia, South Carolina 29203
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1 Childrens Plaza
Dayton, Ohio 45404
(937) 641-3000
Dayton Children's - Dayton We have more than 290,000 reasons to make sure the care...
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Houston, TX
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2316 E Meyer Blvd
Kansas City, Missouri 64132
(816) 276-4000
Research Medical Center Research Medical Center offers hospital and health clinic services across three Kansas...
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Little Rock, Arkansas 72205
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Memphis, Tennessee 38103
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Miami, Florida 33179
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Nashville, Tennessee 37208
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New Hyde Park, New York 11040
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New Orleans, LA
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New Orleans, Louisiana 70112
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201 Lyons Ave
Newark, New Jersey 07112
(973) 926-7000
Newark Beth Israel Medical Center Newark Beth Israel Medical Center, a regional care, teaching hospital...
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Newport News, Virginia 23601
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Oak Lawn, IL
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Oakland, California 94609
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San Diego, CA
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501 6th Avenue South
St. Petersburg, Florida 33701
(727) 898-7451
All Children's Hospital All Children's Hospital provides expert pediatric care for children and families from...
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Stamford, Connecticut 06902
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Tampa, FL
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Tampa, Florida 33607
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Washington, District of Columbia 20060
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Washington,
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