FaceBase Biorepository
| Status: | Completed |
|---|---|
| Conditions: | Neurology, Orthopedic, Women's Studies, Cosmetic |
| Therapuetic Areas: | Dermatology / Plastic Surgery, Neurology, Orthopedics / Podiatry, Reproductive |
| Healthy: | No |
| Age Range: | Any - 125 |
| Updated: | 5/6/2018 |
| Start Date: | November 2010 |
| End Date: | July 2015 |
The purpose of this study is to find out if there are any genetic differences between people
with and without disorders of the head, face, and eye. We will create a biorepository of
samples from people with and without these types of birth defects. A biorepository is a
collection or "bank" of human tissue materials (such as blood or saliva) for research
purposes. These samples will then be available to investigators studying these disorders.
with and without disorders of the head, face, and eye. We will create a biorepository of
samples from people with and without these types of birth defects. A biorepository is a
collection or "bank" of human tissue materials (such as blood or saliva) for research
purposes. These samples will then be available to investigators studying these disorders.
Samples from the FaceBase Biorepository and data collected from these samples will be
available to investigators who are studying birth defects of the head, face, and eye. Data
and samples will be deidentified prior to use by other investigators. Researchers will be
allowed to use samples and medical information only after approval by the FaceBase
Biorepository Data Access Committee. Once the FaceBase Biorepository Data Access Committee
has established that the proposed use of the samples and clinical data meet the criteria for
sound, ethical research, then the investigator will be granted permission to use a small
portion of the sample and have access to clinical data stored in the computer database.
Investigators who are not part of the FaceBase Biorepository Research Team will not know
participant's names or other personally identifiable information.
available to investigators who are studying birth defects of the head, face, and eye. Data
and samples will be deidentified prior to use by other investigators. Researchers will be
allowed to use samples and medical information only after approval by the FaceBase
Biorepository Data Access Committee. Once the FaceBase Biorepository Data Access Committee
has established that the proposed use of the samples and clinical data meet the criteria for
sound, ethical research, then the investigator will be granted permission to use a small
portion of the sample and have access to clinical data stored in the computer database.
Investigators who are not part of the FaceBase Biorepository Research Team will not know
participant's names or other personally identifiable information.
Inclusion Criteria:
- English speaking
- Individual with a craniofacial anomaly or family member of an individual with a
craniofacial anomaly
Exclusion Criteria:
- Non-English speaking
- Prisoners
- Minors in foster care or wards of the court
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University of Iowa With just over 30,000 students, the University of Iowa is one of...
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