Epidemiologic Follow Up Study of Newly Diagnosed Epilepsy Among Seniors
| Status: | Completed |
|---|---|
| Conditions: | Neurology |
| Therapuetic Areas: | Neurology |
| Healthy: | No |
| Age Range: | 65 - Any |
| Updated: | 11/8/2017 |
| Start Date: | January 2011 |
| End Date: | September 2014 |
Epidemiologic Follow Up Study of Newly Diagnosed Epilepsy Among Seniors From Different Ethnic Groups
The purpose of this proposed research is to identify individuals in southeastern Arizona aged
65 years and older who have new onset seizures (or newly diagnosed epilepsy) and monitor them
for at least two years. In doing so the investigators will be able to describe the public
health burden of this condition and to identify factors that predict clinical outcomes and
health care needs in this population, using quantitative, administrative, and qualitative
data. The aims of this proposed research are 1) to determine the two-year incidence of newly
diagnosed epilepsy in the target population, 2) describe health care resource utilization of
the target population using Medicare data, 3) validate the use of Medicare beneficiary data
to estimate incidence of epilepsy, and 4) describe the burden of this condition in different
ethnic groups.
65 years and older who have new onset seizures (or newly diagnosed epilepsy) and monitor them
for at least two years. In doing so the investigators will be able to describe the public
health burden of this condition and to identify factors that predict clinical outcomes and
health care needs in this population, using quantitative, administrative, and qualitative
data. The aims of this proposed research are 1) to determine the two-year incidence of newly
diagnosed epilepsy in the target population, 2) describe health care resource utilization of
the target population using Medicare data, 3) validate the use of Medicare beneficiary data
to estimate incidence of epilepsy, and 4) describe the burden of this condition in different
ethnic groups.
Seniors who have had new onset seizures or newly diagnosed epilepsy will be recruited from
emergency departments (EDs), neurology clinics, primary care clinics (including geriatric
clinics), and other service providers from networks maintained by the Area Agencies on Aging
that serve seniors in southeastern Arizona. Data will be collected in the form of bi-annual
surveys,administrative data (from Medicare), in-depth interviews, and focus groups. Medicare
data will be used to describe and evaluate the likelihood of being hospitalized or admitted
to a long-term facility within two years of being diagnosed, medication adherence and
persistence, and comparing the cost of care between the newly-diagnosed seniors with epilepsy
and comparable seniors who do not have epilepsy. The feasibility and validity of using the
Medicare claims data to estimate newly diagnosed epilepsy will also be assessed. Finally, the
impact of epilepsy on health related quality of life, mental health, perceived stigma, and
family and caregivers will also be evaluated through surveys and qualitative data collection
methods, and ethnic differences will also be described.
emergency departments (EDs), neurology clinics, primary care clinics (including geriatric
clinics), and other service providers from networks maintained by the Area Agencies on Aging
that serve seniors in southeastern Arizona. Data will be collected in the form of bi-annual
surveys,administrative data (from Medicare), in-depth interviews, and focus groups. Medicare
data will be used to describe and evaluate the likelihood of being hospitalized or admitted
to a long-term facility within two years of being diagnosed, medication adherence and
persistence, and comparing the cost of care between the newly-diagnosed seniors with epilepsy
and comparable seniors who do not have epilepsy. The feasibility and validity of using the
Medicare claims data to estimate newly diagnosed epilepsy will also be assessed. Finally, the
impact of epilepsy on health related quality of life, mental health, perceived stigma, and
family and caregivers will also be evaluated through surveys and qualitative data collection
methods, and ethnic differences will also be described.
Inclusion Criteria:
- Aged 65 years or older
- New onset seizure or newly diagnosed epilepsy as of October 2010
- Is a resident of Pima, Cochise or Santa Cruz County
Exclusion Criteria:
- Seizure dues to hyponatremia, hypoglycemia, alcohol use (with no evidence of other
seizures)
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