Mapping Multidimensional Illness Trajectories of Patients With End-stage Kidney Disease
| Status: | Completed |
|---|---|
| Conditions: | Renal Impairment / Chronic Kidney Disease |
| Therapuetic Areas: | Nephrology / Urology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 4/21/2016 |
| Start Date: | March 2012 |
| End Date: | July 2015 |
Mapping Multidimensional Illness Trajectories of Patients With ESKD
Patients with end-stage kidney disease (ESKD) must manage not only the demands of dialysis
and comorbid conditions but also associated symptoms and acute life-threatening events that
contribute to functional limitations and increased risk of mortality. Yet little is known
about the trajectories of quality of life dimensions in patients with ESKD when they
experience acute life-threatening episodes, to guide palliative care for this population. In
this prospective, descriptive study, we will identify trajectories of symptoms, physical
functioning, psychosocial needs, and emotional and spiritual well-being in 200 patients with
ESKD who are at a high risk of experiencing acute life-threatening events and mortality
within 12 months.
and comorbid conditions but also associated symptoms and acute life-threatening events that
contribute to functional limitations and increased risk of mortality. Yet little is known
about the trajectories of quality of life dimensions in patients with ESKD when they
experience acute life-threatening episodes, to guide palliative care for this population. In
this prospective, descriptive study, we will identify trajectories of symptoms, physical
functioning, psychosocial needs, and emotional and spiritual well-being in 200 patients with
ESKD who are at a high risk of experiencing acute life-threatening events and mortality
within 12 months.
Inclusion Criteria:
- aged 18 years or older;
- receiving either Hemodialysis or Peritoneal dialysis
- on dialysis either < 3 months or ≥ 6 months with a Charlson Comorbidity Index (CCI)
score ≥ 5
Exclusion Criteria:
- Patients who are enrolled in hospice or too sick to participate in questionnaire
completion will not be eligible.
- Kidney transplant candidates will be excluded because their illness trajectories
after transplant are likely to differ.
We found this trial at
1
site
Click here to add this to my saved trials
