Worldwide Sarcoidosis Research Study
Status: | Recruiting |
---|---|
Conditions: | Endocrine |
Therapuetic Areas: | Endocrinology |
Healthy: | No |
Age Range: | 18 - Any |
Updated: | 5/26/2018 |
Start Date: | December 2011 |
End Date: | December 2020 |
Contact: | Alicia K Gerke, MD |
Email: | alicia-gerke@uiowa.edu |
Phone: | 319-356-1869 |
The aim of this study is to collect information about the clinical course and characteristics
of sarcoidosis patients around the world through web-based surveys. Recruitment is directed
at and driven by patients in the sarcoidosis community. This will allow the the investigators
to study sarcoidosis patients across all demographic, geographic, and socioeconomic
boundaries, not just patients seen at large research centers. The investigators believe this
study can give investigators a broader and less biased view of sarcoidosis. The investigators
would also like to collect genetic samples on this population to assess genetic variance in
different phenotypes.
The information for the study would be provided through a web based survey system that can be
accessed by patients or physicians of patients from any computer with Internet access. This
system would collect clinical information in sufficient detail so that the phenotype of
individual patients can be evaluated. Upon agreeing to participate in further research
studies through the website, subjects will also have the opportunity to provide a DNA sample.
of sarcoidosis patients around the world through web-based surveys. Recruitment is directed
at and driven by patients in the sarcoidosis community. This will allow the the investigators
to study sarcoidosis patients across all demographic, geographic, and socioeconomic
boundaries, not just patients seen at large research centers. The investigators believe this
study can give investigators a broader and less biased view of sarcoidosis. The investigators
would also like to collect genetic samples on this population to assess genetic variance in
different phenotypes.
The information for the study would be provided through a web based survey system that can be
accessed by patients or physicians of patients from any computer with Internet access. This
system would collect clinical information in sufficient detail so that the phenotype of
individual patients can be evaluated. Upon agreeing to participate in further research
studies through the website, subjects will also have the opportunity to provide a DNA sample.
Inclusion Criteria:
- Diagnosis of Sarcoidosis
- Access to a computer with Internet
Exclusion Criteria:
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University of Iowa With just over 30,000 students, the University of Iowa is one of...
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