Effectiveness of a Knowledge-based Intervention for Patients With Cutaneous Lupus Erythematosus



Status:Completed
Conditions:Lupus
Therapuetic Areas:Immunology / Infectious Diseases
Healthy:No
Age Range:Any
Updated:2/4/2013
Start Date:May 2012
End Date:December 2012
Contact:Jeong Hae Bae
Email:j-bae@northwestern.edu
Phone:3126956829

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Studies have shown that there are significant differences in severity and outcome of lupus
in patients of colored skin compared with Caucasians. There are many factors that lead to
this discrepancy: genetics, poverty, education level, as well as behavioral and cultural
factors. Cutaneous Lupus Erythematosus (CLE) is a disease of flares and remissions with
identifiable triggers. One of the most aggravating triggers in CLE is sun exposure. The
investigators hypothesize that there are disparities in knowledge about photoprotection,
leading to poorer outcomes in minority ethnic groups. This study aims to assess knowledge of
risk factors and triggers, especially sun exposure, and the effects on quality of life of
Caucasian and minority populations, by conducting an assessment survey and subsequent
teaching intervention on appropriate skin protection techniques including appropriate sun
screen application, and use of sun-protective clothing. After three months a survey to
evaluate knowledge retention about and the application of the educational intervention will
be conducted.


Inclusion Criteria:

- Subjects with a diagnosis of cutaneous lupus erythematous

- Subjects ages 18 years of age and older and able to give consent

Exclusion Criteria:

- That which does not fit the inclusion criteria
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