Scleroderma Registry & Repository at the Hospital for Special Surgery
| Status: | Recruiting |
|---|---|
| Conditions: | Skin and Soft Tissue Infections, Dermatology |
| Therapuetic Areas: | Dermatology / Plastic Surgery |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 4/17/2018 |
| Start Date: | August 2006 |
| Contact: | Eliza Pelrine, BA |
| Email: | pelrinee@hss.edu |
| Phone: | (212)774-2123 |
The Scleroderma Registry & Repository
The overall objective of the Scleroderma Registry is to support and promote the basic science
and clinical research of this complex rheumatic disease at the Hospital for Special Surgery
(HSS). The registry facilitates our understanding of the clinical features, pathobiology,
genetics of Scleroderma. This will ultimately lead to a potential treatment for this
currently untreatable condition.
and clinical research of this complex rheumatic disease at the Hospital for Special Surgery
(HSS). The registry facilitates our understanding of the clinical features, pathobiology,
genetics of Scleroderma. This will ultimately lead to a potential treatment for this
currently untreatable condition.
What will be asked of you:
- Completion of 2 health questionnaires
- Donation of research bloods. This is optional, but encouraged (if possible).
- We also encourage patients who come for initial visits to return so follow-up data can
be collected.
Benefits to Patients:
- The HSS Scleroderma Registry gives patients the opportunity to participate in
observational research with the goal of improving the lives of patients in the future.
- By donating research bloods and providing clinical information, patients will help
generate new knowledge about Scleroderma that can guide the treatment and care of
patients afflicted with this rare disease.
- Patients will also receive a comprehensive, medical evaluation from an HSS physician who
specializes in treating Scleroderma. He or she will provide guidance on treatment
options and recommendations for current or upcoming clinical trials.
- Physicians will also make patients aware of the resources available to them, including
support groups and educational programs.
- Completion of 2 health questionnaires
- Donation of research bloods. This is optional, but encouraged (if possible).
- We also encourage patients who come for initial visits to return so follow-up data can
be collected.
Benefits to Patients:
- The HSS Scleroderma Registry gives patients the opportunity to participate in
observational research with the goal of improving the lives of patients in the future.
- By donating research bloods and providing clinical information, patients will help
generate new knowledge about Scleroderma that can guide the treatment and care of
patients afflicted with this rare disease.
- Patients will also receive a comprehensive, medical evaluation from an HSS physician who
specializes in treating Scleroderma. He or she will provide guidance on treatment
options and recommendations for current or upcoming clinical trials.
- Physicians will also make patients aware of the resources available to them, including
support groups and educational programs.
Inclusion Criteria:
- Individuals older than 18 years of age with Scleroderma
Exclusion Criteria:
- Individuals younger than 18 years of age
- Individuals older than 18 years of age without Scleroderma
We found this trial at
1
site
535 E 70th St
New York, New York 10021
New York, New York 10021
(212) 606-1000
Principal Investigator: Robert Spiera, MD
Phone: 212-774-2123
Hospital for Special Surgery Founded in 1863, Hospital for Special Surgery is the nation
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