Body Image in Youth With HIV
| Status: | Completed |
|---|---|
| Conditions: | HIV / AIDS |
| Therapuetic Areas: | Immunology / Infectious Diseases |
| Healthy: | No |
| Age Range: | 16 - 23 |
| Updated: | 5/3/2014 |
| Start Date: | October 2012 |
| End Date: | December 2015 |
| Contact: | Megan Wilkins, PhD |
| Email: | info@stjude.org |
| Phone: | 866-278-5833 |
This is an observational study that seeks to gather information about perceptions of body
image through the use of a one-time questionnaire completed by participants at the time of
study enrollment.
Effective management of Human Acquired Immune Deficiency Syndrome (AIDS) caused by the Human
Immunodeficiency Virus (HIV) has become possible through the use of Highly Active
Antiretroviral Treatment (HAART). As a result of more successful treatment options, HIV/AIDS
has transitioned from a terminal illness to one which is treated as a chronic condition. One
particular group that has been impacted tremendously by HIV in the United States is the
adolescent population. As youth are living longer with HIV/AIDS, clinicians and researchers
are beginning to examine ways in which the disease can affect one's physical health, mental
health, and other psychosocial factors. Research emerging involving adults with HIV/AIDS has
suggested that increased attention to and negative views of one's body image may be found at
a higher rate in this group. To our knowledge, very few studies have examined this
relationship in adolescents with HIV.
image through the use of a one-time questionnaire completed by participants at the time of
study enrollment.
Effective management of Human Acquired Immune Deficiency Syndrome (AIDS) caused by the Human
Immunodeficiency Virus (HIV) has become possible through the use of Highly Active
Antiretroviral Treatment (HAART). As a result of more successful treatment options, HIV/AIDS
has transitioned from a terminal illness to one which is treated as a chronic condition. One
particular group that has been impacted tremendously by HIV in the United States is the
adolescent population. As youth are living longer with HIV/AIDS, clinicians and researchers
are beginning to examine ways in which the disease can affect one's physical health, mental
health, and other psychosocial factors. Research emerging involving adults with HIV/AIDS has
suggested that increased attention to and negative views of one's body image may be found at
a higher rate in this group. To our knowledge, very few studies have examined this
relationship in adolescents with HIV.
The purpose of this exploratory study is to characterize body image perceptions among youth
with perinatally and behaviorally acquired HIV. In a cross-sectional design, adolescents
will be asked to complete an ACASI questionnaire that will assess body image, medication
adherence, depressive symptoms, medical, and other sociodemographic variables which may
relate to adolescents with HIV. Information regarding the adolescents' medical history,
medications, and physical functioning also will be abstracted from his or her medical
record. Guided by the Intervention Mapping (IM) approach, findings from this study will
inform future intervention studies designed to enhance HIV disease management among
adolescents.
PRIMARY OBJECTIVE:
To characterize body image perceptions among youth with HIV.
with perinatally and behaviorally acquired HIV. In a cross-sectional design, adolescents
will be asked to complete an ACASI questionnaire that will assess body image, medication
adherence, depressive symptoms, medical, and other sociodemographic variables which may
relate to adolescents with HIV. Information regarding the adolescents' medical history,
medications, and physical functioning also will be abstracted from his or her medical
record. Guided by the Intervention Mapping (IM) approach, findings from this study will
inform future intervention studies designed to enhance HIV disease management among
adolescents.
PRIMARY OBJECTIVE:
To characterize body image perceptions among youth with HIV.
Inclusion Criteria:
- Diagnosis of HIV infection as documented in adolescent's medical record
- Adolescent is aware of his/her HIV diagnosis
- The adolescent/caregiver's primary language in English
- Adolescent is ≥ 16 and < 24 years old
- Adolescent is willing and able to provide consent per institutional guidelines
Exclusion Criteria:
- Adolescent has documented diagnosis of mental retardation or a significant motor or
sensory impairment that would preclude participation in the study survey.
- Adolescent has known acute psychiatric illness, including suicidal ideation,
homicidal ideation or active psychosis.
- Adolescent is a pregnant female.
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