Evaluation of a Shared Decision Making Portal for Pediatric Asthma



Status:Completed
Conditions:Asthma
Therapuetic Areas:Pulmonary / Respiratory Diseases
Healthy:No
Age Range:6 - 12
Updated:1/1/2014
Start Date:November 2012
End Date:November 2014
Contact:Alexander G Fiks, MD, MSCE
Email:fiks@email.chop.edu
Phone:267-426-2304

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This pilot intervention study will test the feasibility and acceptability and explore the
outcomes of a primary care-based shared decision making (SDM) electronic medical record
(EMR)-based portal that provides education, elicits and tracks patients/families' treatment
concerns and goals, assesses symptoms and asthma control over time, and provides decision
support to clinicians and families.


Inclusion Criteria:

- Parents/legal guardians of children aged 6-12 with persistent asthma, currently
receiving chronic maintenance therapy, cared for at a study practice, with consistent
access to a computer with an internet connection where they feel comfortable
accessing MyChart (patient portal)

- Clinician at study site

Exclusion Criteria:

- parents non-english speaking

- child's primary care provider at the time of enrollment is a pediatric resident

- not meeting inclusion criteria
We found this trial at
1
site
South 34th Street
Philadelphia, Pennsylvania 19104
 215-590-1000
Children's Hospital of Philadelphia Since its start in 1855 as the nation's first hospital devoted...
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mi
from
Philadelphia, PA
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