The National Amyotrophic Lateral Sclerosis Registry
| Status: | Recruiting |
|---|---|
| Conditions: | Neurology |
| Therapuetic Areas: | Neurology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 2/16/2018 |
| Start Date: | October 2010 |
| End Date: | December 2022 |
| Contact: | Paul Mehta, MD |
| Email: | PMehta1@cdc.gov |
| Phone: | 770-488-0556 |
The purpose of this registry is to (A) better describe the incidence and prevalence of
Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors,
such as environmental and occupational, that may be associated with the disease; (C) better
outline key demographic factors (such as age, race or ethnicity, gender, and family history
of individuals who are diagnosed with the disease) associated with the disease; and (D)
better examine the connection between ALS and other motor neuron disorders that can be
confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.
Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors,
such as environmental and occupational, that may be associated with the disease; (C) better
outline key demographic factors (such as age, race or ethnicity, gender, and family history
of individuals who are diagnosed with the disease) associated with the disease; and (D)
better examine the connection between ALS and other motor neuron disorders that can be
confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.
The National ALS Registry's Research Notification System allows person with ALS to
participate in clinical trials.
participate in clinical trials.
Inclusion Criteria:
- U.S. citizens 18 years of age or older
Exclusion Criteria:
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