Caring for Caregivers: Supporting Caregivers of Youth With Spinal Cord Injury
| Status: | Completed |
|---|---|
| Conditions: | Hospital, Hospital, Orthopedic |
| Therapuetic Areas: | Orthopedics / Podiatry, Other |
| Healthy: | No |
| Age Range: | 7 - Any |
| Updated: | 4/26/2018 |
| Start Date: | April 2014 |
| End Date: | December 2016 |
The current study will implement and evaluate a multi-component, psychoeducational
intervention for caregivers of children with spinal cord injury (SCI) ages 7-12. Two
hypotheses will be tested. First, caregivers who participate in the intervention group will
demonstrate better outcomes than caregivers in the control group. Second, children with SCI
whose caregivers participate in the intervention group will demonstrate better outcomes than
children with SCI whose caregivers participate in the control group.
intervention for caregivers of children with spinal cord injury (SCI) ages 7-12. Two
hypotheses will be tested. First, caregivers who participate in the intervention group will
demonstrate better outcomes than caregivers in the control group. Second, children with SCI
whose caregivers participate in the intervention group will demonstrate better outcomes than
children with SCI whose caregivers participate in the control group.
The primary objective of this study is to implement and evaluate an intervention for
caregivers of children with spinal cord injury (SCI) ages 7-12. A further objective of this
pilot study is to identify which outcomes are being affected by the intervention. Past
research has highlighted psychoeducational intervention (i.e., interventions including both
educational/skills-building components and psychological support) as most effective in terms
of impacting caregiver functioning. The current study will recruit 44 caregivers and their
children with SCI. All caregivers will participate in a 2-day Parent Forum, an in-person
educational session. Caregivers will then be randomly assigned to receive monthly phone calls
from a mental health professional ("intervention group") or no additional targeted support
("control group"). We expect that caregivers who participate in the intervention group and
their children will demonstrate better outcomes than caregivers in the control group and
their children.
caregivers of children with spinal cord injury (SCI) ages 7-12. A further objective of this
pilot study is to identify which outcomes are being affected by the intervention. Past
research has highlighted psychoeducational intervention (i.e., interventions including both
educational/skills-building components and psychological support) as most effective in terms
of impacting caregiver functioning. The current study will recruit 44 caregivers and their
children with SCI. All caregivers will participate in a 2-day Parent Forum, an in-person
educational session. Caregivers will then be randomly assigned to receive monthly phone calls
from a mental health professional ("intervention group") or no additional targeted support
("control group"). We expect that caregivers who participate in the intervention group and
their children will demonstrate better outcomes than caregivers in the control group and
their children.
Inclusion Criteria:
- Primary caregivers of youth with SCI ages 7-12 years.
- Youth sustained their SCI at least one year ago.
- Both the caregiver and child are able to speak English.
- Both the caregiver and child are able and willing to sign informed consent/assent and
Health Insurance Portability and Accountability Act (HIPAA) compliant research
authorization.
Exclusion Criteria:
- Caregiver or child has significant cognitive limitations and/or psychiatric
comorbidities. These conditions will be identified by a clinical psychologist or
physician.
We found this trial at
1
site
Click here to add this to my saved trials
