Health-related Quality of Life in Rare Kidney Stone
| Status: | Recruiting |
|---|---|
| Conditions: | Other Indications, Nephrology, Nephrology, Nephrology, Urology |
| Therapuetic Areas: | Nephrology / Urology, Other |
| Healthy: | No |
| Age Range: | 5 - Any |
| Updated: | 10/26/2018 |
| Start Date: | August 2013 |
| End Date: | July 2019 |
| Contact: | Frank Modersitzki, MPH |
| Email: | Frank.Modersitzki@nyumc.org |
| Phone: | 212-686-7500 |
Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney Stone Consortium
Assessment of Health-related Quality of Life in Rare Kidney Stone Formers in the Rare Kidney
Stone Consortium
Stone Consortium
The purpose of this study is to learn about Health-related Quality Of Life (HRQoL) in
patients enrolled in the Rare Kidney Stone Consortium (RKSC) registries. Quality of life
studies look at different aspects of both physical and mental components of people's lives.
HRQoL data for people affected by kidney stones are not currently available for people
followed over time.
patients enrolled in the Rare Kidney Stone Consortium (RKSC) registries. Quality of life
studies look at different aspects of both physical and mental components of people's lives.
HRQoL data for people affected by kidney stones are not currently available for people
followed over time.
Inclusion Criteria:
- Qualify to participate in one of the Rare Kidney Stone Registries.
- Be at least 5 years old (for SF-10)
- Are able to communicate using the English language
- Consent to participate in the study (or "assent" if under 18 years old)
- Have internet access with an email account or a valid home address
Exclusion Criteria:
None, if inclusion criteria are met
We found this trial at
3
sites
Rochester, Minnesota 55905
Principal Investigator: Dawn S Milliner, MD
Phone: 800-270-4637
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New York, New York
Principal Investigator: David S Goldfarb, MD
Phone: 212-686-7500
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Reykjavik,
Principal Investigator: Vidar Edvardsson, MD
Phone: 354-824-5227
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