Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease Prospective Outcomes Registry
| Status: | Recruiting |
|---|---|
| Conditions: | Pulmonary |
| Therapuetic Areas: | Pulmonary / Respiratory Diseases |
| Healthy: | No |
| Age Range: | 40 - Any |
| Updated: | 2/17/2019 |
| Start Date: | June 2014 |
| End Date: | January 2025 |
| Contact: | Rosalia Blanco |
| Email: | rosalia.blanco@duke.edu |
| Phone: | 919-660-0890 |
Idiopathic Pulmonary Fibrosis Prospective Outcomes (IPF-PRO) and Chronic Fibrosing Interstitial Lung Disease With Progressive Phenotype Prospective Outcomes (IPF-PRO/ILD-PRO) Registry
This registry will collect data on the strategies used to achieve a diagnosis of Idiopathic
Pulmonary Fibrosis (IPF) and Chronic Fibrosing Interstitial Lung Disease with Progressive
Phenotype (ILD) and the treatment and management efforts applied throughout study follow-up,
clinical outcome events and patient reported outcome data. Blood samples will be collected
periodically throughout the study for use in future research efforts. For participants with
non-IPF, chronic fibrosing ILD with progressive phenotype, HRCT images will be collected
throughout the study for use in future research efforts.
Pulmonary Fibrosis (IPF) and Chronic Fibrosing Interstitial Lung Disease with Progressive
Phenotype (ILD) and the treatment and management efforts applied throughout study follow-up,
clinical outcome events and patient reported outcome data. Blood samples will be collected
periodically throughout the study for use in future research efforts. For participants with
non-IPF, chronic fibrosing ILD with progressive phenotype, HRCT images will be collected
throughout the study for use in future research efforts.
Inclusion Criteria:
- Willing and able to provide informed consent
- Established a new diagnosis of IPF by the enrolling subspecialty center (as defined by
ATS/ERS/JRS/ALAT criteria)
- Age 40 years or older, or
- Diagnosis of a non-IPF ILD of any duration, including, but not limited to Idiopathic
Non-Specific Interstitial, Pneumonia (iNSIP), Unclassifiable Idiopathic Interstitial
Pneumonias (IIPs), Interstitial Pneumonia with Autoimmune Features (IPAF), Autoimmune
ILDs such as Rheumatoid Arthritis (RA-ILD) and Systemic Sclerosis (SSc-ILD), Chronic
Hypersensitivity Pneumonitis (HP), Sarcoidosis or Exposure-related ILDs such as
asbestosis with progressive phenotype
Exclusion Criteria:
- Malignancy, treated or untreated, other than skin or early stage prostate cancer,
within the past 5 years
- Currently listed for lung transplantation at the time of enrollment
- Currently enrolled in a clinical trial at the time of enrollment in this registry
We found this trial at
45
sites
1720 2nd Ave S
Birmingham, Alabama 35233
Birmingham, Alabama 35233
(205) 934-4011
Principal Investigator: Joao deAndrade, MD
Phone: 205-934-8666
University of Alabama at Birmingham The University of Alabama at Birmingham (UAB) traces its roots...
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5801 South Ellis Avenue
Chicago, Illinois 60637
Chicago, Illinois 60637
773.702.1234
Principal Investigator: Imre Noth, MD
Phone: 773-834-4053
University of Chicago One of the world's premier academic and research institutions, the University of...
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University of Cincinnati Medical Center Opening in 1823 as the country
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9500 Euclid Avenue
Cleveland, Ohio 44106
Cleveland, Ohio 44106
216.444.2200
Principal Investigator: Daniel Culver, MD
Phone: 216-445-0574
Cleveland Clinic Cleveland Clinic is committed to principles as presented in the United Nations Global...
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Durham, North Carolina 27710
(919) 684-8111
Principal Investigator: Lake Morrison, MD
Phone: 919-681-3866
Duke University Younger than most other prestigious U.S. research universities, Duke University consistently ranks among...
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Baylor College of Medicine Baylor College of Medicine in Houston, the only private medical school...
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Los Angeles, California 90095
310-825-4321
Principal Investigator: John Belperio, MD
Phone: 310-794-2466
University of California at Los Angeles The University of California, Los Angeles (UCLA) is an...
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University of Miami A private research university with more than 15,000 students from around the...
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Minneapolis, Minnesota 55455
(612) 625-5000
Principal Investigator: Hyum Kim, MD
Phone: 612-626-7609
Univ of Minnesota With a flagship campus in the heart of the Twin Cities, and...
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University of Pittsburgh The University of Pittsburgh is a state-related research university, founded as the...
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500 S State St
Ann Arbor, Michigan 48109
Ann Arbor, Michigan 48109
(734) 764-1817
Principal Investigator: Kevin Flaherty, MD
Phone: 734-936-8301
University of Michigan The University of Michigan was founded in 1817 as one of the...
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41 Mall Road
Burlington, Massachusetts 1805
Burlington, Massachusetts 1805
781-744-5100
Principal Investigator: Timothy Liesching, MD
Phone: 781-744-2940
Lahey Clinic When Frank Lahey, MD, founded a group practice in 1923, his vision was...
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792 College Parkway
Burlington, Vermont 05401
Burlington, Vermont 05401
Principal Investigator: Prema Menon, MD
Phone: 802-847-3884
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171 Ashley Avenue
Charleston, South Carolina 29425
Charleston, South Carolina 29425
843-792-1414
Principal Investigator: Timothy Whelan, MD
Phone: 843-792-5168
Medical University of South Carolina The Medical University of South Carolina (MUSC) has grown from...
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Dallas, Texas 75390
Principal Investigator: John Fitzgerald, MD
Phone: 214-645-1295
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1400 Jackson St
Denver, Colorado 80206
Denver, Colorado 80206
(303) 388-4461
Principal Investigator: Tristan Huie, MD
Phone: 303-398-1912
National Jewish Health National Jewish Health is known worldwide for treatment of patients with respiratory,...
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Greensboro, North Carolina 27403
Principal Investigator: Murali Ramaswamy, MD
Phone: 336-323-5276
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500 S Preston St
Louisville, Kentucky
Louisville, Kentucky
(502) 852-5555
Principal Investigator: Jesse Roman, MD
Phone: 502-852-1358
University of Louisville The University of Louisville is a state supported research university located in...
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2011 Tate Springs Rd
Lynchburg, Virginia 24501
Lynchburg, Virginia 24501
Principal Investigator: Albert Baker, MD
Phone: 434-947-3963
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8701 W Watertown Plank Rd
Milwaukee, Wisconsin
Milwaukee, Wisconsin
(414) 955-8296
Principal Investigator: Randolph Lipchik, MD
Phone: 414-955-7036
Medical College of Wisconsin The Medical College (MCW) of Wisconsin is a major national research...
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2201 West End Ave
Nashville, Tennessee 37232
Nashville, Tennessee 37232
(615) 322-7311
Principal Investigator: Lisa Lancaster, MD
Phone: 615-343-7068
Vanderbilt University Vanderbilt offers undergraduate programs in the liberal arts and sciences, engineering, music, education...
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New Haven, Connecticut 6520
(203) 432-4771
Principal Investigator: Mridu Gulati, MD
Phone: 203-785-4787
Yale University Yale's roots can be traced back to the 1640s, when colonial clergymen led...
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New Orleans, Louisiana 70112
Principal Investigator: Joe Lasky, MD
Phone: 504-988-4040
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New York, New York 10016
Principal Investigator: Rany Condos, MD
Phone: 646-501-9807
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630 W 168th St
New York, New York
New York, New York
212-305-2862
Principal Investigator: David Lederer, MD
Phone: 212-305-9628
Columbia University Medical Center Situated on a 20-acre campus in Northern Manhattan and accounting for...
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445 E 69th St
New York, New York 10021
New York, New York 10021
(212) 746-1067
Principal Investigator: Robert Kaner, MD
Phone: 646-962-4590
Weill Medical College of Cornell University Founded in 1898, and affiliated with what is now...
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1801 N Broad St
Philadelphia, Pennsylvania 19122
Philadelphia, Pennsylvania 19122
(215) 204-7000
Principal Investigator: Francis Cordova, MD
Phone: 215-707-1041
Temple University Temple University is many things to many people. A place to pursue life's...
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Univ of Pennsylvania Penn has a long and proud tradition of intellectual rigor and pursuit...
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Phoenix, Arizona 85013
Principal Investigator: Rajat Walia, MD
Phone: 602-406-3825
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University of California-Davis As we begin our second century, UC Davis is poised to become...
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450 Serra Mall
Stanford, California 94305
Stanford, California 94305
(650) 723-2300
Principal Investigator: Paul Mohabir, MD
Phone: 650-723-0291
Stanford University Stanford University, located between San Francisco and San Jose in the heart of...
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Wilmington, North Carolina 28401
Principal Investigator: Doug Lee, MD
Phone: 910-815-6108
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3001 Lyndhurst Avenue
Winston-Salem, North Carolina 27103
Winston-Salem, North Carolina 27103
Principal Investigator: Barry Sigal, MD
Phone: 336-659-8414
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