Idiopathic Pulmonary Fibrosis and Interstitial Lung Disease Prospective Outcomes Registry



Status:Recruiting
Conditions:Pulmonary
Therapuetic Areas:Pulmonary / Respiratory Diseases
Healthy:No
Age Range:40 - Any
Updated:2/17/2019
Start Date:June 2014
End Date:January 2025
Contact:Rosalia Blanco
Email:rosalia.blanco@duke.edu
Phone:919-660-0890

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Trial Summary
Trial Overview
Inclusion Criteria

Idiopathic Pulmonary Fibrosis Prospective Outcomes (IPF-PRO) and Chronic Fibrosing Interstitial Lung Disease With Progressive Phenotype Prospective Outcomes (IPF-PRO/ILD-PRO) Registry

This registry will collect data on the strategies used to achieve a diagnosis of Idiopathic
Pulmonary Fibrosis (IPF) and Chronic Fibrosing Interstitial Lung Disease with Progressive
Phenotype (ILD) and the treatment and management efforts applied throughout study follow-up,
clinical outcome events and patient reported outcome data. Blood samples will be collected
periodically throughout the study for use in future research efforts. For participants with
non-IPF, chronic fibrosing ILD with progressive phenotype, HRCT images will be collected
throughout the study for use in future research efforts.


Inclusion Criteria:

- Willing and able to provide informed consent

- Established a new diagnosis of IPF by the enrolling subspecialty center (as defined by
ATS/ERS/JRS/ALAT criteria)

- Age 40 years or older, or

- Diagnosis of a non-IPF ILD of any duration, including, but not limited to Idiopathic
Non-Specific Interstitial, Pneumonia (iNSIP), Unclassifiable Idiopathic Interstitial
Pneumonias (IIPs), Interstitial Pneumonia with Autoimmune Features (IPAF), Autoimmune
ILDs such as Rheumatoid Arthritis (RA-ILD) and Systemic Sclerosis (SSc-ILD), Chronic
Hypersensitivity Pneumonitis (HP), Sarcoidosis or Exposure-related ILDs such as
asbestosis with progressive phenotype

Exclusion Criteria:

- Malignancy, treated or untreated, other than skin or early stage prostate cancer,
within the past 5 years

- Currently listed for lung transplantation at the time of enrollment

- Currently enrolled in a clinical trial at the time of enrollment in this registry
We found this trial at
45
sites
NYU Medical Center
New York, New York 10016
Principal Investigator: Rany Condos, MD
Phone: 646-501-9807
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University of Alabama at Birmingham
1720 2nd Ave S
Birmingham, Alabama 35233
(205) 934-4011 
Principal Investigator: Joao deAndrade, MD
Phone: 205-934-8666
University of Alabama at Birmingham The University of Alabama at Birmingham (UAB) traces its roots...
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Birmingham, AL
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University of Chicago
5801 South Ellis Avenue
Chicago, Illinois 60637
 773.702.1234
Principal Investigator: Imre Noth, MD
Phone: 773-834-4053
University of Chicago One of the world's premier academic and research institutions, the University of...
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Chicago, IL
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University of Cincinnati Medical Center
234 Goodman Dr
Cincinnati, Ohio 45229
(513) 584-1000
University of Cincinnati Medical Center Opening in 1823 as the country
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Cincinnati, OH
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Cleveland Clinic
9500 Euclid Avenue
Cleveland, Ohio 44106
216.444.2200
Principal Investigator: Daniel Culver, MD
Phone: 216-445-0574
Cleveland Clinic Cleveland Clinic is committed to principles as presented in the United Nations Global...
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Cleveland, OH
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Duke University
Durham, North Carolina 27710
(919) 684-8111
Principal Investigator: Lake Morrison, MD
Phone: 919-681-3866
Duke University Younger than most other prestigious U.S. research universities, Duke University consistently ranks among...
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Durham, NC
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Baylor College of Medicine
1200 Moursund Street
Houston, Texas 77030
(713) 798-4951
Baylor College of Medicine Baylor College of Medicine in Houston, the only private medical school...
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Houston, TX
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University of California at Los Angeles
Los Angeles, California 90095
310-825-4321
Principal Investigator: John Belperio, MD
Phone: 310-794-2466
University of California at Los Angeles The University of California, Los Angeles (UCLA) is an...
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University of Miami
Miami, Florida 33124
(305) 284-2211
University of Miami A private research university with more than 15,000 students from around the...
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Miami, FL
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Univ of Minnesota
Minneapolis, Minnesota 55455
(612) 625-5000
Principal Investigator: Hyum Kim, MD
Phone: 612-626-7609
Univ of Minnesota With a flagship campus in the heart of the Twin Cities, and...
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University of Pittsburgh
4200 Fifth Ave
Pittsburgh, Pennsylvania 15260
(412) 624-4141
University of Pittsburgh The University of Pittsburgh is a state-related research university, founded as the...
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Albany Medical Center
Albany, New York 12208
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Albany, NY
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University of Michigan
500 S State St
Ann Arbor, Michigan 48109
(734) 764-1817
Principal Investigator: Kevin Flaherty, MD
Phone: 734-936-8301
University of Michigan The University of Michigan was founded in 1817 as one of the...
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Piedmont Healthcare
Austell, Georgia 30106
Principal Investigator: Amy Case, MD
Phone: 770-745-1404
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Austell, GA
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University from Virginia
Baltimore, Maryland 21201
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Baltimore, MD
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Lahey Clinic
41 Mall Road
Burlington, Massachusetts 1805
781-744-5100
Principal Investigator: Timothy Liesching, MD
Phone: 781-744-2940
Lahey Clinic When Frank Lahey, MD, founded a group practice in 1923, his vision was...
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Burlington, MA
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Vermont Lung Center
792 College Parkway
Burlington, Vermont 05401
Principal Investigator: Prema Menon, MD
Phone: 802-847-3884
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Burlington, VT
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UNC Chapel Hill
CHapel Hill, North Carolina 27599
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CHapel Hill, NC
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Medical University of South Carolina
171 Ashley Avenue
Charleston, South Carolina 29425
843-792-1414
Principal Investigator: Timothy Whelan, MD
Phone: 843-792-5168
Medical University of South Carolina The Medical University of South Carolina (MUSC) has grown from...
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University of Texas Southwestern
Dallas, Texas 75390
Principal Investigator: John Fitzgerald, MD
Phone: 214-645-1295
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Dallas, TX
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Baylor University Medical Center - Dallas
Dallas, Texas 75246
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National Jewish Health
1400 Jackson St
Denver, Colorado 80206
(303) 388-4461
Principal Investigator: Tristan Huie, MD
Phone: 303-398-1912
National Jewish Health National Jewish Health is known worldwide for treatment of patients with respiratory,...
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Denver, CO
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PulmonIx LLC
Greensboro, North Carolina 27403
Principal Investigator: Murali Ramaswamy, MD
Phone: 336-323-5276
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Greensboro, NC
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Houston Methodist Lung Center
Houston, Texas 77030
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Houston, TX
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Wake Forest Baptist Health
Jacksonville, Florida 32207
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Jacksonville, FL
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University of Louisville
500 S Preston St
Louisville, Kentucky
(502) 852-5555
Principal Investigator: Jesse Roman, MD
Phone: 502-852-1358
University of Louisville The University of Louisville is a state supported research university located in...
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Lynchburg Pulmonary Associates
2011 Tate Springs Rd
Lynchburg, Virginia 24501
Principal Investigator: Albert Baker, MD
Phone: 434-947-3963
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Lynchburg, VA
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Loyola University Health System
Maywood, Illinois 60153
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Maywood, IL
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Medical College of Wisconsin
8701 W Watertown Plank Rd
Milwaukee, Wisconsin
(414) 955-8296
Principal Investigator: Randolph Lipchik, MD
Phone: 414-955-7036
Medical College of Wisconsin The Medical College (MCW) of Wisconsin is a major national research...
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Vanderbilt University
2201 West End Ave
Nashville, Tennessee 37232
(615) 322-7311
Principal Investigator: Lisa Lancaster, MD
Phone: 615-343-7068
Vanderbilt University Vanderbilt offers undergraduate programs in the liberal arts and sciences, engineering, music, education...
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Nashville, TN
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Yale University
New Haven, Connecticut 6520
(203) 432-4771
Principal Investigator: Mridu Gulati, MD
Phone: 203-785-4787
Yale University Yale's roots can be traced back to the 1640s, when colonial clergymen led...
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Tulane University
New Orleans, Louisiana 70112
Principal Investigator: Joe Lasky, MD
Phone: 504-988-4040
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New Orleans, LA
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Columbia University Medical Center
630 W 168th St
New York, New York
212-305-2862
Principal Investigator: David Lederer, MD
Phone: 212-305-9628
Columbia University Medical Center Situated on a 20-acre campus in Northern Manhattan and accounting for...
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New York, NY
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Weill Medical College of Cornell University
445 E 69th St
New York, New York 10021
(212) 746-1067
Principal Investigator: Robert Kaner, MD
Phone: 646-962-4590
Weill Medical College of Cornell University Founded in 1898, and affiliated with what is now...
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Temple University
1801 N Broad St
Philadelphia, Pennsylvania 19122
(215) 204-7000
Principal Investigator: Francis Cordova, MD
Phone: 215-707-1041
Temple University Temple University is many things to many people. A place to pursue life's...
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Univ of Pennsylvania
3451 Walnut St
Philadelphia, Pennsylvania 19104
1 (215) 898-5000
Univ of Pennsylvania Penn has a long and proud tradition of intellectual rigor and pursuit...
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St. Joseph's Hospital
Phoenix, Arizona 85013
Principal Investigator: Rajat Walia, MD
Phone: 602-406-3825
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Phoenix, AZ
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Oregon Clinic
Portland, Oregon 97210
Principal Investigator: David Hotchkin, MD
Phone: 503-963-3182
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Portland, OR
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University of California-Davis
1 Shields Ave
Sacramento, California 95616
(530) 752-1011
University of California-Davis As we begin our second century, UC Davis is poised to become...
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Sacramento, CA
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Washington University
Saint Louis, Missouri 63110
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Saint Louis, MO
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South Miami Hospital
South Miami, Florida 33143
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South Miami, FL
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Stanford University
450 Serra Mall
Stanford, California 94305
(650) 723-2300
Principal Investigator: Paul Mohabir, MD
Phone: 650-723-0291
Stanford University Stanford University, located between San Francisco and San Jose in the heart of...
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Renovatio Clinical
The Woodlands, Texas 77380
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The Woodlands, TX
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PMG Research
Wilmington, North Carolina 28401
Principal Investigator: Doug Lee, MD
Phone: 910-815-6108
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Wilmington, NC
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Salem Chest &Southeastern Clinical Research Center
3001 Lyndhurst Avenue
Winston-Salem, North Carolina 27103
Principal Investigator: Barry Sigal, MD
Phone: 336-659-8414
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Winston-Salem, NC
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