Complementary & Alternative Medicine in Parkinson's Disease (CAM Care in PD)
| Status: | Recruiting |
|---|---|
| Conditions: | Parkinsons Disease |
| Therapuetic Areas: | Neurology |
| Healthy: | No |
| Age Range: | 19 - Any |
| Updated: | 7/28/2017 |
| Start Date: | September 2012 |
| End Date: | December 2040 |
| Contact: | Research Assistant |
| Email: | neuroresearch@bastyr.edu |
| Phone: | 425-602-3306 |
Complementary & Alternative Medicine in Parkinson's Disease
We are trying to identify factors associated with improved quality of life and fewer PD
symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals
who report excellent quality of life, few PD symptoms, and reduced rates of progression.
After agreeing to participate, we will ask participants to fill our questionnaires about
their experience with PD, their health in general, along with their food intake every six
months for five years.
symptoms. We are attempting to identify practices, beliefs, and therapies used by individuals
who report excellent quality of life, few PD symptoms, and reduced rates of progression.
After agreeing to participate, we will ask participants to fill our questionnaires about
their experience with PD, their health in general, along with their food intake every six
months for five years.
This is a prospective, observational study designed to describe disease progression, symptom
change, quality of life, diet and lifestyle habits among patients with Parkinson's disease
(PD). This study will identify and describe those individuals with the highest quality of
life and least amount of disease activity, in order to describe medication, diet, and
lifestyle patterns associated with a lack of PD disease progression and high quality of life.
Participants will be asked to complete online surveys every six months for five years. The
time requirement is about an hour to an hour and a half every six months. Participants do not
need to answer questions if they do not feel comfortable answering.
At each six month time point we will send participants an email with the link to the CAM Care
in PD survey, a questionnaire about health and wellbeing (completed in REDCap). After
participants have completed this survey we will send participants a link to the second
survey, about dietary intake (completed on ASA24.gov). Because there is a designated window
of time during which surveys must be completed, participants may receive a gentle reminder
from us if time is running out.
This study is not designed to provide care. Participants are encouraged to consult with any
providers you wish. Participants will not directly benefit from the study, but information
gathered during the course of this study may help us begin to assess the longer-term effects
of complementary and integrative care on health, disease progression and quality of life in
PD patients.
change, quality of life, diet and lifestyle habits among patients with Parkinson's disease
(PD). This study will identify and describe those individuals with the highest quality of
life and least amount of disease activity, in order to describe medication, diet, and
lifestyle patterns associated with a lack of PD disease progression and high quality of life.
Participants will be asked to complete online surveys every six months for five years. The
time requirement is about an hour to an hour and a half every six months. Participants do not
need to answer questions if they do not feel comfortable answering.
At each six month time point we will send participants an email with the link to the CAM Care
in PD survey, a questionnaire about health and wellbeing (completed in REDCap). After
participants have completed this survey we will send participants a link to the second
survey, about dietary intake (completed on ASA24.gov). Because there is a designated window
of time during which surveys must be completed, participants may receive a gentle reminder
from us if time is running out.
This study is not designed to provide care. Participants are encouraged to consult with any
providers you wish. Participants will not directly benefit from the study, but information
gathered during the course of this study may help us begin to assess the longer-term effects
of complementary and integrative care on health, disease progression and quality of life in
PD patients.
Inclusion Criteria:
- Parkinson's disease (PD)
- Parkinsonism
- Parkinson-plus syndromes (e.g. Multiple System Atrophy (MSA), Progressive Supranuclear
Palsy (PSP), Corticobasal degeneration (CBGD), Dementia with Lewy bodies)
- Must have online access, an email address, basic computer literacy
- Must be willing to complete online surveys every 6 months for 5 years
Exclusion Criteria:
- Inability to read/write English
- Inability or unwillingness to complete surveys every six (6) months (~90 min)
We found this trial at
1
site
Kenmore, Washington
Principal Investigator: Laurie K Mischley, NDMPHPhD(c)
Phone: 425-602-3306
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