EXPLORE: A Natural History Study of Acute Hepatic Porphyria (AHP)
| Status: | Recruiting |
|---|---|
| Conditions: | Gastrointestinal |
| Therapuetic Areas: | Gastroenterology |
| Healthy: | No |
| Age Range: | 12 - Any |
| Updated: | 3/14/2019 |
| Start Date: | August 2014 |
| End Date: | December 2020 |
| Contact: | Alnylam Clinical Trials Hotline Call for Complete Site List |
| Phone: | 617-575-7400 |
A Natural History Study of Acute Hepatic Porphyria (AHP) Patients With Recurrent Attacks
The purpose of this study is to characterize the natural history and clinical management of
Acute Hepatic Porphyria (AHP) patients with recurring attacks.
Acute Hepatic Porphyria (AHP) patients with recurring attacks.
Inclusion Criteria:
- Males and females aged >/= 12 years
- Diagnosis of AHP [acute intermittent porphyria (AIP), variegate porphyria (VP),
hereditary coproporphyria (HCP) and aminolevulinic acid dehydratase (ALAD) deficient
porphyria (ADP)]
- Porphyria attacks in the past 12 months or receiving treatment to prevent attacks
- Willing to provide written informed consent, medical records, and to comply with study
requirements
Exclusion Criteria:
• Current participation in a clinical trial of an investigational product
We found this trial at
10
sites
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