Survey on Supplement Use in Mitochondrial Disease
| Status: | Completed |
|---|---|
| Conditions: | Gastrointestinal |
| Therapuetic Areas: | Gastroenterology |
| Healthy: | No |
| Age Range: | Any |
| Updated: | 4/2/2016 |
| Start Date: | September 2014 |
| End Date: | September 2015 |
The purpose of this study is to learn about the use of nutritional supplements in patients
with mitochondrial disease.
with mitochondrial disease.
Our goal is to better assess which nutritional supplements are prescribed to patients with
mitochondrial disorders, the monitoring obtained and whether any subjective improvements are
noted by the patients or their caregivers.
mitochondrial disorders, the monitoring obtained and whether any subjective improvements are
noted by the patients or their caregivers.
Inclusion Criteria:
- NAMDC Clinical Registry or RDCRN Contact Registry participant
- Diagnosis of a mitochondrial disease confirmed by either electron transport chain
abnormalities or molecular testing.
Exclusion Criteria:
- Lack of participation in NAMDC or RDCRN registries
- Diagnosis of mitochondrial disorder not confirmed by ETC studies or molecular
diagnosis
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