Survey on Cardiovascular Events in Patients With Metabolic Disease on Chronic Carnitine Supplementation
Status: | Completed |
---|---|
Conditions: | Endocrine |
Therapuetic Areas: | Endocrinology |
Healthy: | No |
Age Range: | Any |
Updated: | 4/2/2016 |
Start Date: | September 2014 |
End Date: | September 2015 |
The purpose of this study is to learn about the effects of long term carnitine use in
patients with metabolic disorders and its potential relationship to cardiovascular events.
patients with metabolic disorders and its potential relationship to cardiovascular events.
This online cross-sectional survey will examine the self-reported long-term carnitine use in
patients with metabolic disorders and any potential relationship to cardiovascular events.
patients with metabolic disorders and any potential relationship to cardiovascular events.
Inclusion Criteria:
- Diagnosis of mitochondrial disease or any other metabolic disorder
- Any age group
- NAMDC or RDCRN registry participant
Exclusion Criteria:
- Inability to provide informed consent and complete survey
- Lack of participation in NAMDC or RDCRN registry
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