Relationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With NF
| Status: | Recruiting |
|---|---|
| Conditions: | Cancer, Other Indications |
| Therapuetic Areas: | Oncology, Other |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 4/21/2016 |
| Start Date: | February 2015 |
| End Date: | September 2016 |
| Contact: | Ana-Maria Vranceanu, PhD |
| Email: | avranceanu@partners.org |
| Phone: | 617-643-7996 |
Relationship Between Psychosocial Factors, Health Literacy, Quality of Life and Satisfaction With Medical Visits in Adults With Neurofibromatosis 1, Neurofibromatosis 2, and Schwannomatosis
This is a prospective study through the NF clinic at Massachusetts General Hospital that
will examine the relationship between psychosocial factors, health literacy, and
satisfaction with the medical visit in adults with NF1, NF2, and Schwannomatosis. A total of
89 participants will be enrolled in the study.
will examine the relationship between psychosocial factors, health literacy, and
satisfaction with the medical visit in adults with NF1, NF2, and Schwannomatosis. A total of
89 participants will be enrolled in the study.
Inclusion Criteria:
1. Age 18 or older
2. Can read and speak English at or above the 6th grade level
3. Diagnosis of neurofibromatosis type 1, neurofibromatosis type 2, or schwannomatosis
Exclusion Criteria:
1. Severe active or untreated major mental illness that would interfere with study
participation, to be determined at the discretion of the study investigator (e.g.
untreated psychosis or suicidality)
2. Unable or unwilling to participate
3. Unable or unwilling to complete psychological assessments online via the REDCap or
Assessment Center systems.
We found this trial at
1
site
185 Cambridge Street
Boston, Massachusetts 02114
Boston, Massachusetts 02114
617-724-5200
Phone: 617-643-7996
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