Attitudes and Knowledge Regarding Clinical Trials in Underserved Populations Receiving Care at the Comprehensive Cancer Center of Wake Forest University

PRIMARY OBJECTIVES:

I. To describe perceived quality of care received in the CCCWFU adult oncology clinics by
patients belonging to one of the racial/ethnic minority and underserved populations
(Hispanic/Latino, Black/African American, rural, uninsured, or young adult).

II. To describe cancer-related health needs of racial/ethnic minority and underserved
patients in the CCCWFU adult oncology clinics.

III. To describe attitudes towards, and knowledge regarding, clinical trials in racial/ethnic
minority and underserved patients treated in the CCCWFU adult oncology clinics.

SECONDARY OBJECTIVES:

I. To compare levels of perceived quality of care, cancer-related health needs and attitudes
towards and knowledge of clinical trials in racial/ethnic minority and underserved patients
to a comparison group of non-minority/underserved patients treated in the CCCWFU adult
oncology clinics.

II. To describe perceived quality of care received in the CCCWFU adult oncology clinics,
cancer-related health needs, and attitudes towards, and knowledge regarding clinical trials
by elderly patients.

OUTLINE:

Patients complete survey items across a number of domains (patient characteristics, access to
health care, perceived quality of care, clinical trial knowledge and attitudes, and cancer
related health needs). Patients also complete questionnaires to obtain demographics
information including age, education, race and ethnicity, marital status, employment status,
insurance coverage, and income, as well as health status/indicators. Cancer-related
characteristics, including diagnosis, stage, time since diagnosis, and treatments received
are obtained self-report and patients' medical records.

Inclusion Criteria:

- Patients who have received a diagnosis of a malignant cancer

- Patients belonging to one of the minority/underserved populations: self-reported
Hispanic/Latino or Black/African American, rural, uninsured, or young adult (ages
18-39) at the time of diagnosis, or are a randomly sampled patient with an upcoming
scheduled appointment at CCCWFU that does not meet the definition of underserved for
this study

- Patients who have a scheduled outpatient appointment physically located at a CCCWFU
adult oncology clinic (main medical campus) and have completed at least three
outpatient medical appointments at CCCWFU in the adult oncology clinics

Exclusion Criteria:

- Patients who receive their cancer care in clinics outside of adult oncology at CCCWFU

- Patients receiving care at the CCCWFU adult oncology clinics for screening, diagnostic
or non-cancer related reasons only

- Unable or unwilling to consent or complete the survey