Identifying Family Members in Need of Support During Cancer Care and Bereavement
| Status: | Recruiting |
|---|---|
| Conditions: | Cancer, Cancer |
| Therapuetic Areas: | Oncology |
| Healthy: | No |
| Age Range: | 21 - Any |
| Updated: | 6/6/2018 |
| Start Date: | May 2015 |
| End Date: | May 2019 |
| Contact: | Wendy Lichtenthal, PhD |
| Phone: | 646-888-4812 |
The purpose of this study is to develop a screening tool to help identify family members who
may need professional emotional support. The investigators are interested in enrolling family
members of patients with advanced cancer care as well as family members who have lost a loved
one to cancer. Some screening tools to identify family members who might need support do
exist, but the investigators are hoping to develop one that is brief and easier for
healthcare providers to use. The information learned in this study will help us refine the
screening tool. The investigators are interviewing family members to identify which questions
or items work well, which seem unclear, and to understand how a family member might approach
completing the screening tool. Family member input will be essential in the development of
this screening tool.
may need professional emotional support. The investigators are interested in enrolling family
members of patients with advanced cancer care as well as family members who have lost a loved
one to cancer. Some screening tools to identify family members who might need support do
exist, but the investigators are hoping to develop one that is brief and easier for
healthcare providers to use. The information learned in this study will help us refine the
screening tool. The investigators are interviewing family members to identify which questions
or items work well, which seem unclear, and to understand how a family member might approach
completing the screening tool. Family member input will be essential in the development of
this screening tool.
Inclusion Criteria:
- As per self-report, 21 years or older
- As per self-report, has a domestic partner or spouse, child (minor or adult), sibling
(sister or brother), or parent diagnosed with an advanced cancer diagnosis OR As per
self-report, experienced the recent (within 2 months to 3 year) cancer-related death
of a domestic partner or spouse, child (minor or adult), sibling, or parent
- Responds "yes" to the question "Can you understand spoken and written English?
- Agrees to be audio-taped during the cognitive interview [Waves 1 and 2 only] * For
Part 2 only: In the event that the patient dies prior to a consenting pre-loss family
member completing the study questionnaires, the family member will be eligible for
participation in the post-loss group after at least 2 months have passed after the
loss
Exclusion Criteria:
- Significant psychiatric or cognitive disturbance sufficient, in the investigators'
judgment, to preclude the completion of the assessment measures or informed consent
(i.e., acute psychiatric or neurological symptoms which require individual treatment)
- Another family member (parent, domestic partner or spouse, sibling, or adult child)
has been enrolled in the study
We found this trial at
2
sites
1275 York Ave
New York, New York 10021
New York, New York 10021
(212) 639-2000
Principal Investigator: Wendy Lichtenthal, Ph.D.
Phone: 646-888-4812
Memorial Sloan Kettering Cancer Center Memorial Sloan Kettering Cancer Center — the world's oldest and...
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