Webnovela for Hispanic Dementia Family Caregivers
| Status: | Completed |
|---|---|
| Conditions: | Alzheimer Disease, Neurology |
| Therapuetic Areas: | Neurology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 9/15/2018 |
| Start Date: | June 2015 |
| End Date: | September 2016 |
Photozig and Stanford University are creating a new program for Hispanic dementia caregivers
to help cope with caregiving, alleviate related stress, and enhance quality of life for
caregivers, with funding from the National Institute on Aging. The program includes a new
education online telenovela (Webnovela), online resources, handouts and a DVD (for users
without Internet) on how to deal with caregiving stress and handle difficult situations.
to help cope with caregiving, alleviate related stress, and enhance quality of life for
caregivers, with funding from the National Institute on Aging. The program includes a new
education online telenovela (Webnovela), online resources, handouts and a DVD (for users
without Internet) on how to deal with caregiving stress and handle difficult situations.
The goal of Webnovela program is to evaluate and develop materials for helping caregivers to
cope with caregiving, alleviate related distress, and improve their quality of life.
The investigators are evaluating different materials, which may provide caregiving
strategies, practical tips and help to enhance caregivers' skills to deal with demanding
tasks of caregiving, alleviate related stress, and improve quality of life.
Research Program Steps:
1. Caregivers will be asked some simple questions about themselves and their family members
to see if they are eligible for the project (fill out Enrollment Form and Informed
Consent).
2. A Program survey will be sent, which can be completed online, or returned in a
pre-mailed envelope.
3. Participants will receive links to online resources, related materials and instructions.
The investigators ask participants to access the online resources, read provided
brochures and guides, and follow the instructions. Materials are expected to help
participants in their caregiver role.
4. After completing the program, the second and final survey should be filled out online or
returned by pre-mailed envelope.
cope with caregiving, alleviate related distress, and improve their quality of life.
The investigators are evaluating different materials, which may provide caregiving
strategies, practical tips and help to enhance caregivers' skills to deal with demanding
tasks of caregiving, alleviate related stress, and improve quality of life.
Research Program Steps:
1. Caregivers will be asked some simple questions about themselves and their family members
to see if they are eligible for the project (fill out Enrollment Form and Informed
Consent).
2. A Program survey will be sent, which can be completed online, or returned in a
pre-mailed envelope.
3. Participants will receive links to online resources, related materials and instructions.
The investigators ask participants to access the online resources, read provided
brochures and guides, and follow the instructions. Materials are expected to help
participants in their caregiver role.
4. After completing the program, the second and final survey should be filled out online or
returned by pre-mailed envelope.
Inclusion Criteria:
- Care for an individual with Alzheimer's Disease or other dementia.
- Have Internet access or own a DVD player.
- Minimum age of 18 years old.
- Belong to Hispanic/Latino ethnic group.
- Spend at least 8 hours/week caring for a person with dementia, which may include
assisting, watching, monitoring, or being available to help (e.g. during sleep time)
Exclusion Criteria:
- Severe psychological or physical illness.
- Inability to read and follow Spanish instructions.
- High level of depressive symptoms.
- Unwillingness to participate in all aspects of the study.
We found this trial at
1
site
Moffett Field, California 94035
Principal Investigator: Bruno Kajiyama, MS. BS
Phone: 650-694-7496
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