Quality of Life (QOL) Registry for Patients With AL Amyloidosis
| Status: | Active, not recruiting |
|---|---|
| Conditions: | Hematology |
| Therapuetic Areas: | Hematology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 11/23/2017 |
| Start Date: | October 2015 |
| End Date: | April 2018 |
Prospective Observational Study Measuring the Short-Form36 ( SF-36v2) and Other QOL Tools in an AL Amyloidosis Population
This is an online registry to document the psychometric properties of SF-36v2 among patients
with AL Amyloidosis, to document patients' burden of disease, to better understand the
patient's experience and to follow quality of life issues using a variety of QOL measures.
with AL Amyloidosis, to document patients' burden of disease, to better understand the
patient's experience and to follow quality of life issues using a variety of QOL measures.
Inclusion Criteria:
- Patients must have AL Amyloidosis
Exclusion Criteria:
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