PregSource: Crowdsourcing to Understand Pregnancy
| Status: | Recruiting |
|---|---|
| Conditions: | Women's Studies |
| Therapuetic Areas: | Reproductive |
| Healthy: | No |
| Age Range: | 18 - 70 |
| Updated: | 11/1/2018 |
| Start Date: | September 25, 2017 |
| End Date: | September 30, 2021 |
| Contact: | Stephanie Wilson Archer, MA |
| Email: | PregSource@nih.gov |
| Phone: | 301-496-0430 |
PregSource: Crowdsourcing to Understand Pregnancy, Observations of Daily Living From Pregnant Women
PregSource uses a crowd-sourcing approach, asking pregnant women to enter information
regularly and directly about their pregnancies throughout gestation and the early infancy of
their babies into online surveys and trackers via a website and/or mobile application
("app"). In exchange, participants can track their data over time, print out reports to share
with their healthcare team, and see how they compare to other women. In addition, PregSource
will provide participants with links to trusted, evidence-based information about pregnancy
management, issues, and complications.
regularly and directly about their pregnancies throughout gestation and the early infancy of
their babies into online surveys and trackers via a website and/or mobile application
("app"). In exchange, participants can track their data over time, print out reports to share
with their healthcare team, and see how they compare to other women. In addition, PregSource
will provide participants with links to trusted, evidence-based information about pregnancy
management, issues, and complications.
The objective of PregSource: Crowdsourcing to Understand Pregnancy (PregSource) is: to better
understand the range of physical and emotional experiences and alterations in behavior that
women have during pregnancy and after giving birth, the impact of these experiences on
women's lives, and the perinatal challenges encountered by special sub-populations of women.
PregSource uses a longitudinal, crowd-sourcing, citizen science approach, asking pregnant
women regularly and directly about their pregnancies. Participants enter information
throughout gestation and the early infancy of their babies into online surveys and trackers
via a website and/or mobile application ("app"). In exchange, participants will be able to
track their pregnancy data over time, print out reports to share with their healthcare team,
and view summaries of de-identified data to see how they compare to other women. In addition,
PregSource will provide participants with links to trusted, evidence-based information from
partner organizations about pregnancy management, issues, and complications.
Participants may also be a potential pool of recruits for clinical studies. Based on
information they enter, eligible women who are interested in participating in clinical
studies may be sent contact information about observational or interventional studies. Their
contact information will not be shared directly with researchers.
After a critical mass of data is collected, de-identified data will be available to approved
researchers for analysis.
understand the range of physical and emotional experiences and alterations in behavior that
women have during pregnancy and after giving birth, the impact of these experiences on
women's lives, and the perinatal challenges encountered by special sub-populations of women.
PregSource uses a longitudinal, crowd-sourcing, citizen science approach, asking pregnant
women regularly and directly about their pregnancies. Participants enter information
throughout gestation and the early infancy of their babies into online surveys and trackers
via a website and/or mobile application ("app"). In exchange, participants will be able to
track their pregnancy data over time, print out reports to share with their healthcare team,
and view summaries of de-identified data to see how they compare to other women. In addition,
PregSource will provide participants with links to trusted, evidence-based information from
partner organizations about pregnancy management, issues, and complications.
Participants may also be a potential pool of recruits for clinical studies. Based on
information they enter, eligible women who are interested in participating in clinical
studies may be sent contact information about observational or interventional studies. Their
contact information will not be shared directly with researchers.
After a critical mass of data is collected, de-identified data will be available to approved
researchers for analysis.
Inclusion Criteria:
- Women who are pregnant
Exclusion Criteria:
- Males
- Women who are not pregnant
- Women under 18 years of age or older than 70 years of age
- Women who are unable to provide consent for themselves, and for whom a parent, legal
guardian, or legally authorized representative does not provide consent
We found this trial at
1
site
Bethesda, Maryland 20892
Phone: 301-496-5577
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