Peer Mentoring in Promoting Follow-up Care Self-Management in Younger Childhood Cancer Survivors

PRIMARY OBJECTIVES:

I. Develop the self-management + peer mentoring program to improve adolescent and young adult
(AYA) self-management of long-term follow-up care.

II. Evaluate the feasibility of the self-management + peer mentoring program in a pilot
trial.

III. Assess preliminary outcomes of the peer mentoring program.

OUTLINE:

PHASE 1: Participants (providers, survivors, and caregivers) complete a 60 minute interview
to help develop the intervention to improve AYA self-management of care.

PHASE 2: Participants will be asked to complete online self-management educational modules
and 6 weekly peer mentor calls to facilitate engagement with the online modules and offer
specialized support.

Inclusion Criteria:

- PHASE 1: PATIENT ELIGIBILITY: At least 1.5 years from treatment (which is a typical
time for preparation to transfer to long-term follow-up care)

- PHASE 1: PARENT ELIGIBILITY: Caregiver of a pediatric cancer survivor age 18-25 who
was primary caregiver at diagnosis

- PHASE 1: PARENT ELIGIBILITY: Patient is at least 1.5 years from treatment

- PHASE 1: PROVIDER ELIGIBILITY: Health professional who works with childhood cancer
survivors ages 18 to 25

- PHASE 2: PEER MENTOR ELIGIBILITY: Age 21-29

- PHASE 2: PEER MENTOR ELIGIBILITY: At least 1.5 years from treatment

- PHASE 2: PEER MENTOR ELIGIBILITY: Self-reported primary responsibility for care and
"complete readiness" using the Readiness for Transition Questionnaire

- PHASE 2: PATIENT ELIGIBILITY: Age 18-25

- PHASE 2: PATIENT ELIGIBILITY: At least 1.5 years from treatment

- PHASE 2: PATIENT ELIGIBILITY: Currently does not independently self-manage follow-up
care according to self-report to assume total responsibility for care (i.e., reports
low readiness [score of 1 or 2 out of 4] OR scores <3 on any of the 10-item
responsibility scale from the Readiness for Transition Questionnaire)

Exclusion Criteria:

- PHASE 1: PATIENT EXCLUSION CRITERIA: Physician- or self-reported cognitive delay or
impairment that would prevent self-management of healthcare

- PHASE 1: PARENT EXCLUSION CRITERIA: Patient has physician- or caregiver-reported
cognitive delay or impairment that would prevent self-management of healthcare

- No provider exclusion criteria

- PHASE 2: PATIENT EXCLUSION CRITERIA: Physician- or self-reported cognitive delay or
impairment that would prevent self-management of healthcare