Predictors of Caregiver Adaptation to Pervasive Developmental Disorders
| Status: | Completed |
|---|---|
| Conditions: | Cognitive Studies, Other Indications, Neurology, Psychiatric, Psychiatric, Autism |
| Therapuetic Areas: | Neurology, Psychiatry / Psychology, Other |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 2/17/2019 |
| Start Date: | June 27, 2007 |
| End Date: | December 7, 2015 |
Understanding Caregiver Adaptation to Pervasive Developmental Disorders
This study will explore predictors of how caregivers might adapt to children diagnosed with a
pervasive developmental disorder (PDD), including autism, Asperger s syndrome, childhood
disintegrative disorder, Rett s disorder or other not specified PDD. PDD presents particular
challenges for caregivers because of the communication and socialization challenges of
affected children and because of the uncertainty surrounding the cause, prognosis and
recurrence risks.
People 18 years of age or older who are the primary caregiver for a child diagnosed with a
PDD may be eligible for this study. Participants fill out a survey, either online or in hard
copy, that includes information in the following categories:
- How being a caregiver for a child with a PDD has impacted the caregiver.
- How much control the caregiver feels that he or she or others have over certain aspects
of their child s PDD.
- What the caregiver thinks caused the child s PDD.
- What coping techniques the caregiver uses in caring for a child with a PDD.
- How uncertain the caregiver feels about his or her child s PDD.
- What the caregiver feels about him- or herself as a caregiver of a child with a PDD.
- General questions about the caregiver, his or her family and the child with a PDD.
pervasive developmental disorder (PDD), including autism, Asperger s syndrome, childhood
disintegrative disorder, Rett s disorder or other not specified PDD. PDD presents particular
challenges for caregivers because of the communication and socialization challenges of
affected children and because of the uncertainty surrounding the cause, prognosis and
recurrence risks.
People 18 years of age or older who are the primary caregiver for a child diagnosed with a
PDD may be eligible for this study. Participants fill out a survey, either online or in hard
copy, that includes information in the following categories:
- How being a caregiver for a child with a PDD has impacted the caregiver.
- How much control the caregiver feels that he or she or others have over certain aspects
of their child s PDD.
- What the caregiver thinks caused the child s PDD.
- What coping techniques the caregiver uses in caring for a child with a PDD.
- How uncertain the caregiver feels about his or her child s PDD.
- What the caregiver feels about him- or herself as a caregiver of a child with a PDD.
- General questions about the caregiver, his or her family and the child with a PDD.
This study aims to understand the predictors of adaptation among primary caregivers of
children with a pervasive developmental disorder (PDD). PDD presents particular challenges
for caregivers because of the communication and socialization challenges of affected
children, as well as the uncertainty surrounding the cause, prognosis and recurrence risks.
The literature suggests that these challenges may make the process of adapting to having a
child with a PDD different than it is for other chronic conditions. This study of caregivers
is based on Lazarus and Folkman s Transactional Model of Stress and Coping. A cross-sectional
design will be used to investigate the relationships among causal attributions, control
perceptions, coping and adaptation. Caregivers will be recruited from support groups,
listservs and magazines targeted to autism and other PDDs. Participants will be asked to
complete either a web-based or paper survey. The main outcome measure is psychological
adaptation to caregiving a child with PDD.
children with a pervasive developmental disorder (PDD). PDD presents particular challenges
for caregivers because of the communication and socialization challenges of affected
children, as well as the uncertainty surrounding the cause, prognosis and recurrence risks.
The literature suggests that these challenges may make the process of adapting to having a
child with a PDD different than it is for other chronic conditions. This study of caregivers
is based on Lazarus and Folkman s Transactional Model of Stress and Coping. A cross-sectional
design will be used to investigate the relationships among causal attributions, control
perceptions, coping and adaptation. Caregivers will be recruited from support groups,
listservs and magazines targeted to autism and other PDDs. Participants will be asked to
complete either a web-based or paper survey. The main outcome measure is psychological
adaptation to caregiving a child with PDD.
- INCLUSION CRITERIA:
Must be 18 or older and the primary caregiver for a child with one of the five diagnosis
categorized as a pervasive developmental disorder.
EXCLUSION CRITERIA:
May not be younger than 18 years of age.
We found this trial at
1
site
9000 Rockville Pike
Bethesda, Maryland 20892
Bethesda, Maryland 20892
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