Effects of an Adapted Ski/Snowboarding Program on Quality of Life in Children With Physical Disabilities
| Status: | Active, not recruiting |
|---|---|
| Conditions: | Hospital, Neurology, Orthopedic |
| Therapuetic Areas: | Neurology, Orthopedics / Podiatry, Other |
| Healthy: | No |
| Age Range: | 8 - 18 |
| Updated: | 9/20/2018 |
| Start Date: | October 2010 |
| End Date: | December 2018 |
Effects of Adapted Skiing and Snowboarding on Quality of Life in Children With Physical Disabilities
This study is assessing quality of life in children with a physical disability who
participate in the Children's Hospital Colorado Hospital Sports Program (HSP), where children
with physical disabilities are able to participate in more organized sports and active
programs with the use of adaptive equipment. This study would assess a child's self reported
and parent perceived quality of life before and after child participation in HSP for the
winter season. The investigators aim to determine the level of child and parent happiness and
satisfaction in specific quality of life aspects including: physical activities and health,
feelings, moods, self perception, home life, friends, school, learning and bullying. The
investigators believe that children with any physical disability will have a more
satisfactory reported quality of life after participating in HSP for one or many years.
participate in the Children's Hospital Colorado Hospital Sports Program (HSP), where children
with physical disabilities are able to participate in more organized sports and active
programs with the use of adaptive equipment. This study would assess a child's self reported
and parent perceived quality of life before and after child participation in HSP for the
winter season. The investigators aim to determine the level of child and parent happiness and
satisfaction in specific quality of life aspects including: physical activities and health,
feelings, moods, self perception, home life, friends, school, learning and bullying. The
investigators believe that children with any physical disability will have a more
satisfactory reported quality of life after participating in HSP for one or many years.
The purpose of this proposed research is to quantify the impact of participation in an
adaptive ski/snowboarding program on parent perceived and child self-reported health related
quality of life. To this effect, the study will assess children's self-perception of
psychological, emotional, physical health of participants as well as their parents perception
of the same, through the use of a validated self reported quality of life questionnaire,
KIDSCREEN-52, before and after participating in an adaptive ski/snowboarding program every
year.
Primary Aims:
1. To determine the level of subject and parent satisfaction and happiness, through a
composite of 10 aspects in a quality of life questionnaire, following participation in
the Children's Hospital Colorado Hospital Sports Program (HSP) for one winter season.
2. To determine the long-term impact of repeated participation in an adapted
ski/snowboarding program through a composite of 10 aspects in a quality of life
questionnaire, following participation in the Children's Hospital Colorado Hospital
Sports Program (HSP) for consistent winter seasons.
adaptive ski/snowboarding program on parent perceived and child self-reported health related
quality of life. To this effect, the study will assess children's self-perception of
psychological, emotional, physical health of participants as well as their parents perception
of the same, through the use of a validated self reported quality of life questionnaire,
KIDSCREEN-52, before and after participating in an adaptive ski/snowboarding program every
year.
Primary Aims:
1. To determine the level of subject and parent satisfaction and happiness, through a
composite of 10 aspects in a quality of life questionnaire, following participation in
the Children's Hospital Colorado Hospital Sports Program (HSP) for one winter season.
2. To determine the long-term impact of repeated participation in an adapted
ski/snowboarding program through a composite of 10 aspects in a quality of life
questionnaire, following participation in the Children's Hospital Colorado Hospital
Sports Program (HSP) for consistent winter seasons.
Inclusion Criteria:
- Physical disability
- Participant of HSP program
Exclusion Criteria:
- Completed parent and child KIDSCREEN questionnaires are not received before the
subject's first day of skiing or snowboarding with the program
- Completed parent and child KIDSCREEN questionnaires are not received within 3 months
after subject's completed participation with the program for that winter season
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