Evaluation of the PACE/PACENET BHL Caregiver Program

The University of Pennsylvania's Caregiver Resources, Education, & SupporT (CREST) Program
seeks to improve the overall quality of life and wellbeing of older PACE/PACENET
beneficiaries (or care recipients (CRs)) with cognitive impairment and their caregivers
(CGs). Specifically, the program provides education, support, and services to both
beneficiaries and CGs of PACE/PACENET beneficiaries who have filled a prescription for
medication used to treat cognitive impairment. Many of these beneficiaries also meet criteria
for clinically significant cognitive impairment/dementia. Thus, the level of contact and
services varies as a function of reported needs and symptoms.

The CREST Program developed the BHL Caregiver Outreach and Telehealth Program (COTP) in an
effort to address and minimize barriers to successful care management of a growing number of
community-dwelling older adults. The COTP starts with an initial baseline assessment;
following the baseline assessment, it is then divided into several core services. CGs receive
care management services, which includes contact, support, and active listening, as well as
written material regarding caregiving and dementia and referral to appropriate community
services. CGs also are offered the Telehealth Education Program (TEP), a manualized program
developed to provide both education and psychosocial support for individuals caring for older
adults with clinically significant cognitive impairment/dementia.

This research project seeks to evaluate the feasibility, acceptability, and individual-level
outcomes of a subset of participants engaged in the COPT program. Specifically, the
investigators will examine the impact of the COPT program on the functioning and wellbeing of
participating cognitively impaired PACE/PACENET beneficiaries and their informal CGs.

Retrospective clinical program data on COTP beneficiaries and the CGs collected at intake
(i.e., baseline), over the course of care management, and at program termination (i.e.,
approximately 3 months following intake) will be extracted from clinical databases for
program evaluation purposes. The researchers will use data collected during the clinical
program to evaluate CR and CG characteristics, self-reported needs, care participation, and
predictors of improved outcomes at 3 and 6 months.

A single follow-up research evaluation will be conducted at 6 months post baseline. This the
6 month follow-up research interviews will evaluate the extent to which a clinical care
management program (COTP) for older adults with clinically significant cognitive impairment
and/or dementia and the CGs, 1) facilitates access to and the use of medical and social
services, and 2) improves CR (e.g., behavioral symptoms, delayed nursing home placement) and
CG (e.g., CG mastery, burden, affect) outcomes.

Inclusion Criteria:

1. Aged 18 and older, males and females.

2. The beneficiary screened positive for clinically significant cognitive impairment
(BOMC score > 14) during the Care Recipient Baseline BHL COTP interview and agreed to
allow COPT staff to speak with a CG, OR, the beneficiary could not complete the Care
Recipient Baseline BHL COTP interview at all, agreed to allow COPT staff to speak with
a CG on their behalf, and the CG verified that the beneficiary has clinically
significant cognitive impairment (via AD8 score of 2 or more) and/or a dementia
diagnosis made by a health care provider.

3. CG provides verbal informed consent to the use of retrospective clinical BHL COTP data
and participation in the 6 Month Outcome Research Evaluation at the completion of the
3 Month Program Termination visit.

Exclusion Criteria:

- Not meeting the inclusion criteria listed above.