Taking Charge of Systemic Sclerosis



Status:Recruiting
Conditions:Skin and Soft Tissue Infections, Dermatology, Dermatology
Therapuetic Areas:Dermatology / Plastic Surgery
Healthy:No
Age Range:18 - Any
Updated:4/21/2016
Start Date:March 2016
End Date:November 2017
Contact:Jennifer Serrano
Email:scleroderma-selfmanagement@umich.edu
Phone:734-232-2119

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Taking Charge of Systemic Sclerosis: Improving Patient Outcomes Through Self-management

This Study is a collaborative project with partners (people with scleroderma and
stakeholders) designed to refine an internet program for patients with scleroderma and to
compare the internet program to an authoritative educational book (Taking Charge of Systemic
Sclerosis [TOSS]). During a 16-week comparative effectiveness 16-week randomized controlled
trial, the investigators will recruit up to 250 patients who will be randomized to either
TOSS or authoritative book for patients, The Scleroderma Book: A Guide for Patients and
Families.


Inclusion Criteria:

- All participants will be residents of the United States

- Diagnosed with systemic scleroderma,

- 18 years of age

- Possess basic computer literacy and have access to a computer with Internet and email
capabilities

- Have the ability to communicate in English

Exclusion Criteria:

- No computer access

- Inability to communicate in English
We found this trial at
1
site
500 S State St
Ann Arbor, Michigan 48109
(734) 764-1817
Phone: 734-232-2119
University of Michigan The University of Michigan was founded in 1817 as one of the...
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mi
from
Ann Arbor, MI
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