Taking Charge of Systemic Sclerosis
Status: | Recruiting |
---|---|
Conditions: | Skin and Soft Tissue Infections, Dermatology, Dermatology |
Therapuetic Areas: | Dermatology / Plastic Surgery |
Healthy: | No |
Age Range: | 18 - Any |
Updated: | 4/21/2016 |
Start Date: | March 2016 |
End Date: | November 2017 |
Contact: | Jennifer Serrano |
Email: | scleroderma-selfmanagement@umich.edu |
Phone: | 734-232-2119 |
Taking Charge of Systemic Sclerosis: Improving Patient Outcomes Through Self-management
This Study is a collaborative project with partners (people with scleroderma and
stakeholders) designed to refine an internet program for patients with scleroderma and to
compare the internet program to an authoritative educational book (Taking Charge of Systemic
Sclerosis [TOSS]). During a 16-week comparative effectiveness 16-week randomized controlled
trial, the investigators will recruit up to 250 patients who will be randomized to either
TOSS or authoritative book for patients, The Scleroderma Book: A Guide for Patients and
Families.
stakeholders) designed to refine an internet program for patients with scleroderma and to
compare the internet program to an authoritative educational book (Taking Charge of Systemic
Sclerosis [TOSS]). During a 16-week comparative effectiveness 16-week randomized controlled
trial, the investigators will recruit up to 250 patients who will be randomized to either
TOSS or authoritative book for patients, The Scleroderma Book: A Guide for Patients and
Families.
Inclusion Criteria:
- All participants will be residents of the United States
- Diagnosed with systemic scleroderma,
- 18 years of age
- Possess basic computer literacy and have access to a computer with Internet and email
capabilities
- Have the ability to communicate in English
Exclusion Criteria:
- No computer access
- Inability to communicate in English
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University of Michigan The University of Michigan was founded in 1817 as one of the...
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