Duke Lupus Registry
| Status: | Recruiting |
|---|---|
| Conditions: | Lupus |
| Therapuetic Areas: | Immunology / Infectious Diseases |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 10/17/2018 |
| Start Date: | July 2007 |
| End Date: | June 2020 |
| Contact: | Laura Neil |
| Email: | laura.k.neil@duke.edu |
| Phone: | (919) 684-8936 |
Lupus is a systemic autoimmune disease that can present with many varied symptoms, including
joint pain, fevers, kidney disease, and rashes. Lupus can affect anyone, but it is most
common in younger women.
The Duke Lupus Registry will collect information and blood samples from patients with lupus
(systemic lupus erythematosus or cutaneous lupus) seen in the Duke Rheumatology clinics. The
goal of this Registry is to understand how lupus changes over time so that we can improve the
treatment of patients with lupus.
joint pain, fevers, kidney disease, and rashes. Lupus can affect anyone, but it is most
common in younger women.
The Duke Lupus Registry will collect information and blood samples from patients with lupus
(systemic lupus erythematosus or cutaneous lupus) seen in the Duke Rheumatology clinics. The
goal of this Registry is to understand how lupus changes over time so that we can improve the
treatment of patients with lupus.
The Duke Lupus Registry is a prospective cohort comprised of patients with lupus seen in the
Duke Rheumatology clinic.
The Duke Lupus Registry has two main purposes:
1. Improved patient care. By following disease activity scores and medication usage, we
expect to improve our care of the patients seen in clinic.
2. Future research on lupus outcomes. This may encompass a broad array of areas, including
but not limited to cardiovascular health, pregnancy and fertility, infections,
medication use, quality of life, and depression.
At each office visit, patients will complete a questionnaire, physicians will measure lupus
activity, and patients may be asked to provide a small blood sample. Patients will not be
required to make extra visits to Duke in order to participate -- all paperwork and blood
draws will occur during a regularly scheduled office visit with the physician.
Duke Rheumatology clinic.
The Duke Lupus Registry has two main purposes:
1. Improved patient care. By following disease activity scores and medication usage, we
expect to improve our care of the patients seen in clinic.
2. Future research on lupus outcomes. This may encompass a broad array of areas, including
but not limited to cardiovascular health, pregnancy and fertility, infections,
medication use, quality of life, and depression.
At each office visit, patients will complete a questionnaire, physicians will measure lupus
activity, and patients may be asked to provide a small blood sample. Patients will not be
required to make extra visits to Duke in order to participate -- all paperwork and blood
draws will occur during a regularly scheduled office visit with the physician.
Inclusion Criteria:
- Diagnosis of Systemic Lupus Erythematosus or Cutaneous Lupus
- Patient of a rheumatologist at Duke University Medical Center
Exclusion Criteria:
- Inability to travel to Duke for follow-up visits
- Inability to speak English
- Not able to provide informed consent
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