COPD Patient-Powered Research Network
| Status: | Recruiting |
|---|---|
| Conditions: | Bronchitis, Chronic Obstructive Pulmonary Disease, Chronic Obstructive Pulmonary Disease, Pulmonary |
| Therapuetic Areas: | Pulmonary / Respiratory Diseases |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 2/3/2019 |
| Start Date: | August 2014 |
| End Date: | January 2030 |
| Contact: | Cara B Pasquale, MPH |
| Email: | cpasquale@copdfoundation.org |
| Phone: | 866-731-2673 |
The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the
goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share
their heath information over several years and participate in research. The COPD PPRN has
built an online platform to allow volunteers to enroll electronically, complete surveys, be
contacted about studies they qualify for and become connected to COPD resources. The goal of
the registry is to speed research to find better treatments for COPD and ultimately a cure.
goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share
their heath information over several years and participate in research. The COPD PPRN has
built an online platform to allow volunteers to enroll electronically, complete surveys, be
contacted about studies they qualify for and become connected to COPD resources. The goal of
the registry is to speed research to find better treatments for COPD and ultimately a cure.
Inclusion Criteria:
- 18 years or older that says yes to one of the following:
- COPD diagnosis
- Current or former smoker
- Family history of respiratory disease
- Symptomatic of respiratory disease
Exclusion Criteria:
- Non-English speaking
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