aHUS Observational Long Term Follow-Up



Status:Active, not recruiting
Conditions:Gastrointestinal, Hematology
Therapuetic Areas:Gastroenterology, Hematology
Healthy:No
Age Range:Any
Updated:7/27/2016
Start Date:March 2012
End Date:January 2017

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An Observational, Multi-Center, Multi-National, Long Term Follow-Up Study of Atypical Hemolytic Uremic Syndrome (aHUS) Patients Treated With Eculizumab in a Prior Clinical Study

There is growing but limited information on the long term clinical status of aHUS patients
who have previously received or are continuing to receive treatment with eculizumab. This
study is designed to collect clinical data that will provide insight into the long-term
outcomes of patients with aHUS.


Inclusion Criteria:

- aHUS patients who participated in any one of the aHUS-eculizumab clinical studies.

- aHUS patients or legal representative who are able and willing to given written
informed consent for their study information to be collected and retained in a
database.

Exclusion Criteria:
We found this trial at
17
sites
Osh Kosh, Wisconsin
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Osh Kosh, WI
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3533 South Alameda Street
Corpus Christi, Texas 78411
(361) 694-5000
Driscoll Children's Hospital Driscoll Children's Hospital was built because Clara Driscoll's will requested that a...
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Corpus Christi, TX
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11143 Parkview Plaza Dr # 100
Fort Wayne, Indiana 46845
(260) 484-8830
Fort Wayne Medical Oncology and Hematology Fort Wayne Medical Oncology and Hematology provides state-of-the-art cancer...
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Fort Wayne, IN
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Atlanta, GA
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300 Longwood Ave
Boston, Massachusetts 02115
(617) 355-6000
Boston Children's Hospital Boston Children's Hospital is a 395-bed comprehensive center for pediatric health care....
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Boston, MA
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Bronx, New York 10467
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Bronx, NY
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Cincinnati, Ohio 45229
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Cincinnati, OH
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Columbus, OH
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Detroit, Michigan 48202
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Detroit, MI
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Dunwoody, GA
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Fort Wayne, IN
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Hawthorne, New York
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Hawthorne, NY
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Houston, TX
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New York, New York 10021
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New York, NY
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North Tce. Adelaide, 5000
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North Tce. Adelaide,
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4800 Sand Point Way NE
Seattle, Washington 98105
(206) 987-2000
Seattle Children's Hospital Seattle Children’s Hospital specializes in meeting the unique physical, emotional and developmental...
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Seattle, WA
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101 W 8th Ave
Spokane, Washington 99204
(509) 474-3131
Providence Sacred Heart Medical Center & Children's Hospital When Mother Joseph and the Sisters of...
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mi
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Spokane, WA
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