National Collaborative to Improve Care of Children With Complex Congenital Heart Disease
| Status: | Recruiting |
|---|---|
| Conditions: | Cardiology, Cardiology, Cardiology |
| Therapuetic Areas: | Cardiology / Vascular Diseases |
| Healthy: | No |
| Age Range: | Any |
| Updated: | 4/17/2018 |
| Start Date: | May 2016 |
| End Date: | May 2028 |
| Contact: | Bridget Butz |
| Email: | bridget.butz@cchmc.org |
| Phone: | (513)803-9166 |
National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) - A Collaborative Initiative to Improve Care of Children With Complex Congenital Heart Disease
The purpose of this initiative is to improve care and outcomes for infants with HLHS by
expanding the NPC-QIC national registry to gather clinical care process, outcome, and
developmental data on infants with HLHS between diagnosis and 12 months of age, by improving
the use of standards into everyday practice across pediatric cardiology centers, and by
engaging parents as partners in the process.
expanding the NPC-QIC national registry to gather clinical care process, outcome, and
developmental data on infants with HLHS between diagnosis and 12 months of age, by improving
the use of standards into everyday practice across pediatric cardiology centers, and by
engaging parents as partners in the process.
The purpose of this initiative is to improve care and outcomes for infants with HLHS by: 1)
expanding the established NPC-QIC national registry to gather clinical care process, outcome,
and developmental data on infants with HLHS between diagnosis and 12 months of age, 2)
improving implementation of consensus standards, tested by teams, into everyday practice
across pediatric cardiology centers, and 3) engaging parents as partners in improving care
and outcomes.
expanding the established NPC-QIC national registry to gather clinical care process, outcome,
and developmental data on infants with HLHS between diagnosis and 12 months of age, 2)
improving implementation of consensus standards, tested by teams, into everyday practice
across pediatric cardiology centers, and 3) engaging parents as partners in improving care
and outcomes.
Inclusion Criteria:
- Fetuses or newborns diagnosed with HLHS or other univentricular condition
- Intended to undergo Norwood procedure
Exclusion Criteria:
We found this trial at
61
sites
Kansas City, Missouri 64108
Principal Investigator: Amy Lay, MD
Phone: 816-895-5083
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Akron Children's Hospital From humble beginnings as a day nursery in 1890, Akron Children
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3333 Burnet Avenue # Mlc3008
Cincinnati, Ohio 45229
Cincinnati, Ohio 45229
1-513-636-4200
Phone: 513-803-9166
Cincinnati Children's Hospital Medical Center Patients and families from across the region and around the...
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700 Childrens Drive
Columbus, Ohio 43205
Columbus, Ohio 43205
(616) 722-2000
Principal Investigator: Richard Fernandez, MD
Phone: 614-722-2561
Nationwide Children's Hospital At Nationwide Children’s, we are creating the future of pediatric health care....
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1000 Joe DiMaggio Drive
Hollywood, Florida 33021
Hollywood, Florida 33021
Principal Investigator: Kak-Chen Chan, MD
Phone: 954-265-3437
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4650 Sunset Blvd
Los Angeles, California 90027
Los Angeles, California 90027
(323) 660-2450
Principal Investigator: Jay Pruetz
Phone: 323-361-5182
Childrens Hospital Los Angeles Children's Hospital Los Angeles is a 501(c)(3) nonprofit hospital for pediatric...
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South 34th Street
Philadelphia, Pennsylvania 19104
Philadelphia, Pennsylvania 19104
215-590-1000
Principal Investigator: Therese Giglia, MD
Phone: 215-435-6342
Children's Hospital of Philadelphia Since its start in 1855 as the nation's first hospital devoted...
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4401 Penn Avenue
Pittsburgh, Pennsylvania 15224
Pittsburgh, Pennsylvania 15224
412-692-5325
Principal Investigator: Evon Morell, MD
Children's Hospital of Pittsburgh of UPMC UPMC is one of the leading nonprofit health systems...
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601 Elmwood Avenue
Rochester, New York 14642
Rochester, New York 14642
(585) 275-2100
Principal Investigator: Cecelia Meagher, MD
Phone: 585-275-4167
Univ of Rochester Medical Center One of the nation's top academic medical centers, the University...
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Ann Arbor, Michigan 48167
Principal Investigator: Katherine Bates, MD
Phone: 734-615-9748
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1405 Clifton Road NE
Atlanta, Georgia 30322
Atlanta, Georgia 30322
404-785-6000
Principal Investigator: Martha Clabby, MD
Phone: 404-785-6792
Children's Healthcare of Atlanta Whether treating a toddler in an emergency or supporting a teen...
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13123 E 16th Ave
Aurora, Colorado 80045
Aurora, Colorado 80045
(720) 777-1234
Principal Investigator: Adel Younoszai, MD
Phone: 720-777-3366
Children's Hospital Colorado At Children's Hospital Colorado, we see more, treat more and heal more...
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Baltimore, Maryland 21201
Principal Investigator: Alica Chaves, MD
Phone: 410-328-0344
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1800 Orleans St.
Baltimore, Maryland 21287
Baltimore, Maryland 21287
410-955-5000
Principal Investigator: Lasya Gaur, MD
Johns Hopkins Hospital Patients are the focus of everything we do at The Johns Hopkins...
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Birmingham, Alabama 35233
Principal Investigator: Waldemar Carlo, MD
Phone: 205-934-3460
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300 Longwood Ave
Boston, Massachusetts 02115
Boston, Massachusetts 02115
(617) 355-6000
Principal Investigator: David Brown, MD
Phone: 617-355-8427
Boston Children's Hospital Boston Children's Hospital is a 395-bed comprehensive center for pediatric health care....
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Bronx, New York 10467
Principal Investigator: Nicole Sutton, MD
Phone: 718-741-2543
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171 Ashley Avenue
Charleston, South Carolina 29425
Charleston, South Carolina 29425
843-792-1414
Principal Investigator: Frances Woodward, RN
Phone: 843-792-3289
Medical University of South Carolina The Medical University of South Carolina (MUSC) has grown from...
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Charlotte, North Carolina 28203
Principal Investigator: Resai Bengur, MD
Phone: 704-381-3949
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Charlottesville, Virginia 22903
Principal Investigator: Jeffrey Vergales, MD
Phone: 434-924-9119
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225 E Chicago Ave
Chicago, Illinois 60611
Chicago, Illinois 60611
(312) 227-4000
Principal Investigator: George Verghese, MD
Phone: 312-227-1549
Ann & Robert H. Lurie Children's Hospital of Chicago Ann & Robert H. Lurie Children
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Cleveland, Ohio 44092
Principal Investigator: Nancy Dobrolet, MD
Phone: 216-983-5261
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Cleveland, Ohio 44124
Principal Investigator: Francine Erenberg, MD
Phone: 216-444-4313
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1935 Medical District Dr
Dallas, Texas 75235
Dallas, Texas 75235
(214) 456-7000
Principal Investigator: Thomas Zellers, MD
Phone: 214-502-5294
Children's Medical Center of Dallas Children's Medical Center is private, not-for-profit, and is the fifth-largest...
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2301 Erwin Rd
Durham, North Carolina 27710
Durham, North Carolina 27710
919-684-8111
Principal Investigator: Michael Camitta, MD
Duke Univ Med Ctr As a world-class academic and health care system, Duke Medicine strives...
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801 7th Avenue
Fort Worth, Texas 76104
Fort Worth, Texas 76104
(682) 885-4000
Principal Investigator: Lisa Rotten, MD
Phone: 682-885-4195
Cook Children's Medical Center Cook Children's Health Care System is a not-for-profit, nationally recognized pediatric...
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Gainesville, Florida 32606
Principal Investigator: Jennifer Co-Vu, MD
Phone: 352-281-6723
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Harrisburg, Pennsylvania 22908
Principal Investigator: Vincent Aluquin, MD
Phone: 717-531-8674
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6621 Fannin St
Houston, Texas 77030
Houston, Texas 77030
(832) 824-1000
Principal Investigator: Elena Ocampo, MD
Phone: 832-826-5931
Texas Children's Hospital Texas Children's Hospital, located in Houston, Texas, is a not-for-profit organization whose...
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Indianapolis, Indiana 46202
Principal Investigator: Anne Farrell, MD
Phone: 317-274-8906
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Iowa City, Iowa 52242
Principal Investigator: Benjamin Reinking, MD
Phone: 319-384-8365
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Jackson, Mississippi 39216
Principal Investigator: Avichal Aggarwal, MD
Phone: 601-984-5284
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Jefferson, Louisiana 70121
Principal Investigator: Ivory Crittendon, MD
Phone: 504-842-5200
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1 Children's Way
Little Rock, Arkansas 72202
Little Rock, Arkansas 72202
(501) 364-1100
Principal Investigator: Michelle Moss, MD
Arkansas Children's Hospital Arkansas Children's Hospital (ACH) is the only pediatric medical center in Arkansas...
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Los Angeles, California 90095
Principal Investigator: Nancy Halnon, MD
Phone: 310-267-7616
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Madison, Wisconsin 53792
Principal Investigator: Sharda Srivinivasan, MD
Phone: 608-263-1470
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Memphis, Tennessee 38103
Principal Investigator: Ranjit Philip, MD
Phone: 901-287-5955
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9000 W Wisconsin Ave #270
Milwaukee, Wisconsin 53226
Milwaukee, Wisconsin 53226
(414) 266-2000
Principal Investigator: Garick Hill, MD
Phone: 414-266-3524
Children's Hospital of Wisconsin Nothing matters more than our children. At Children's Hospital of Wisconsin,...
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Minneapolis, Minnesota 55404
Principal Investigator: Christine Hills, MD
Phone: 612-813-8800
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2450 Riverside Avenue
Minneapolis, Minnesota 55454
Minneapolis, Minnesota 55454
Principal Investigator: Rebecca Ameduri, MD
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Nashville, Tennessee 37232
Principal Investigator: David Parra, MD
Phone: 615-512-0359
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New Hyde Park, New York 11040
Principal Investigator: Elizabeth Vinas, RN, MD
Phone: 718-470-3460
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New York, New York 10016
Principal Investigator: Anne Chun, MD
Phone: 718-612-2099
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Oak Lawn, Illinois 60453
Principal Investigator: Andrew Vanbergen, MD
Phone: 708-684-3772
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8200 Dodge St
Omaha, Nebraska 68114
Omaha, Nebraska 68114
(402) 955-5400
Principal Investigator: John Kugler, MD
Phone: 402-955-4350
Children's Hospital and Medical Center of Omaha Children's Hospital & Medical Center has a rich...
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Orlando, Florida
Principal Investigator: Craig Fleishman, MD
Phone: 407-497-7178
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Palo Alto, California 94304
Principal Investigator: Gail Wright, MD
Phone: 650-815-8398
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1919 E Thomas Rd
Phoenix, Arizona 85006
Phoenix, Arizona 85006
(602) 933-1000
Principal Investigator: Amy Svenson, MD
Phone: 480-363-7192
Phoenix Children's Hospital Phoenix Children's Hospital has provided hope, healing, and the best healthcare for...
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Sacramento, California 95819
Principal Investigator: James Hill, MD
Phone: 916-262-9151
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Sacramento, California 95817
Principal Investigator: Andrew Pelech, MD
Phone: 916-734-0835
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Saint Louis, Missouri 63110
Principal Investigator: Caroline Lee, MD
Phone: 314-286-0522
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Salt Lake City, Utah 84143
Principal Investigator: Dongngan Truong, MD
Phone: 801-662-5573
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4800 Sand Point Way NE
Seattle, Washington 98105
Seattle, Washington 98105
(206) 987-2000
Principal Investigator: Titus Chan, MD
Seattle Children's Hospital Seattle Children’s Hospital specializes in meeting the unique physical, emotional and developmental...
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555 University Avenue
Toronto, Ontario M5G 1X8
Toronto, Ontario M5G 1X8
Principal Investigator: Alejandro Floh, MD
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111 Michigan Ave NW
Washington, District of Columbia
Washington, District of Columbia
(202) 476-5000
Principal Investigator: Sarah Clauss, MD
Phone: 202-476-5759
Childrens National Medical Center As the nation’s children’s hospital, the mission of Children’s National Medical...
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Wilmington, Delaware 19803
Principal Investigator: Jose Ettedgui, MD
Phone: 302-651-6686
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