Registry of Mastectomy for Breast Cancer Risk Reduction

This is a registry for patients who have a risk-reduction mastectomy ("prophylactic
mastectomy") due to being at high risk for developing breast cancer, followed by breast
reconstruction. Eligible patients include those who have a breast cancer-related gene, a
strong family history of breast cancer, or a personal history of high-risk conditions such
as cancer in the other breast or ductal carcinoma in situ (DCIS). Patients are enrolled in
the registry before surgery, and are followed for up to ten years afterwards. In addition to
studying medical outcomes, we will periodically survey patients for quality-of-life issues
and psychological well-being. There is no compensation for being enrolled in this registry.
This registry is conducted through the Department of Plastic Surgery at Georgetown
University Hospital, and is a sub-registry to the Fisher Familial Cancer Registry at the
Lombardi Comprehensive Cancer Center at Georgetown University.