Refining and Testing the Electronic Social Network Assessment Program (eSNAP)



Status:Active, not recruiting
Conditions:Cancer, Brain Cancer
Therapuetic Areas:Oncology
Healthy:No
Age Range:18 - Any
Updated:2/21/2019
Start Date:May 5, 2017
End Date:April 2020

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The purpose of the study is to learn more about neuro-oncology caregivers' quality of life
and how friends and families help neuro-oncology cancer caregivers at different times during
treatment.

Former Aim 1: Refine eSNAP data-gathering and visualization prototypes based on evaluations
of user experience, including usability, satisfaction and applicability. The refining process
was completed at the University of Utah.

Aim 2: Test the feasibility of implementing eSNAP in a neuro-oncology clinical setting and
collect preliminary effectiveness data of eSNAP on Family Caregiver outcomes, including
quality of life and stress, and mediators (Family Caregiver social support utilization and
burden). The feasibility process will take place at Moffitt Cancer Center.

This study will be a 2x2 longitudinal design. Caregivers of primary brain tumor patients will
be compared to caregivers of patients with secondary brain tumors (brain metastases) to
determine if there is something unique about the cancer-specific duties of primary versus
secondary brain tumors that could impact the effectiveness of the eSNAP application. An
intervention group will be compared to a control group for both types of caregivers.
Participants will be randomized 2:1 for the intervention and control. All caregivers will be
followed for 6 weeks and will be asked to complete questionnaires at 3 time points;
caregivers in the intervention group will also be asked to use the eSNAP application at time
1, which will be available to them for the duration of the study.

Inclusion Criteria:

- Family caregiver of a patient with primary or secondary brain tumor

- Age 18 years or older

- Able to speak and write English

Exclusion Criteria:

- Does not meet the Inclusion Criteria
We found this trial at
1
site
12902 USF Magnolia Dr
Tampa, Florida 33612
(888) 663-3488
Principal Investigator: Maija Reblin, Ph.D.
Phone: 813-745-8705
H. Lee Moffitt Cancer Center & Research Institute Moffitt Cancer Center in Tampa, Florida, has...
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Tampa, FL
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