Adaptation Among Adolescents and Adults With Klinefelter Syndrome
| Status: | Completed |
|---|---|
| Conditions: | Other Indications |
| Therapuetic Areas: | Other |
| Healthy: | No |
| Age Range: | 14 - 80 |
| Updated: | 4/6/2019 |
| Start Date: | May 5, 2009 |
| End Date: | January 13, 2015 |
This study aims to understand the impact of living with Klinefelter syndrome (KS) and the
factors that contribute to adaptation in adolescents and adults. Individuals with KS may have
variable symptoms, including hypogonadism, gynecomastia, learning disabilities, and delay and
underdevelopment of secondary sexual characteristics. Perhaps the most challenging symptom of
KS is infertility, which seems to be a universal symptom. It is not fully understood how
males with KS conceptualize their condition, cope with their diagnosis, and adapt to living
with this condition. In this study, Lazarus and Folkman s Transactional Model of Stress and
Coping provides a framework for examining coping and adaptation in males with KS. A
cross-sectional research design using a quantitative survey will be utilized to examine the
relationships among appraisals (illness perceptions and perceived stigma), time elapsed since
learning of diagnosis, coping, and adaptation. Adolescents and adults with KS will be
recruited from national KS support networks via website postings, email listservs, and
printed newsletter postings. Adolescents will also be recruited from a private practice.
Participants will have the option to complete an online or paper version of the survey. The
main outcome variable is adaptation to living with a KS diagnosis....
factors that contribute to adaptation in adolescents and adults. Individuals with KS may have
variable symptoms, including hypogonadism, gynecomastia, learning disabilities, and delay and
underdevelopment of secondary sexual characteristics. Perhaps the most challenging symptom of
KS is infertility, which seems to be a universal symptom. It is not fully understood how
males with KS conceptualize their condition, cope with their diagnosis, and adapt to living
with this condition. In this study, Lazarus and Folkman s Transactional Model of Stress and
Coping provides a framework for examining coping and adaptation in males with KS. A
cross-sectional research design using a quantitative survey will be utilized to examine the
relationships among appraisals (illness perceptions and perceived stigma), time elapsed since
learning of diagnosis, coping, and adaptation. Adolescents and adults with KS will be
recruited from national KS support networks via website postings, email listservs, and
printed newsletter postings. Adolescents will also be recruited from a private practice.
Participants will have the option to complete an online or paper version of the survey. The
main outcome variable is adaptation to living with a KS diagnosis....
This study aims to understand the impact of living with Klinefelter syndrome (KS) and the
factors that contribute to adaptation in adolescents and adults. Individuals with KS may have
variable symptoms, including hypogonadism, gynecomastia, learning disabilities, and delay and
underdevelopment of secondary sexual characteristics. Perhaps the most challenging symptom of
KS is infertility, which seems to be a universal symptom. It is not fully understood how
males with KS conceptualize their condition, cope with their diagnosis, and adapt to living
with this condition. In this study, Lazarus and Folkman s Transactional Model of Stress and
Coping provides a framework for examining coping and adaptation in males with KS. A
cross-sectional research design using a quantitative survey will be utilized to examine the
relationships among appraisals (illness perceptions and perceived stigma), time elapsed since
learning of diagnosis, coping, and adaptation. Adolescents and adults with KS will be
recruited from national KS support networks via website postings, email listservs, and
printed newsletter postings. Adolescents will also be recruited from a private practice.
Participants will have the option to complete an online or paper version of the survey. The
main outcome variable is adaptation to living with a KS diagnosis.
factors that contribute to adaptation in adolescents and adults. Individuals with KS may have
variable symptoms, including hypogonadism, gynecomastia, learning disabilities, and delay and
underdevelopment of secondary sexual characteristics. Perhaps the most challenging symptom of
KS is infertility, which seems to be a universal symptom. It is not fully understood how
males with KS conceptualize their condition, cope with their diagnosis, and adapt to living
with this condition. In this study, Lazarus and Folkman s Transactional Model of Stress and
Coping provides a framework for examining coping and adaptation in males with KS. A
cross-sectional research design using a quantitative survey will be utilized to examine the
relationships among appraisals (illness perceptions and perceived stigma), time elapsed since
learning of diagnosis, coping, and adaptation. Adolescents and adults with KS will be
recruited from national KS support networks via website postings, email listservs, and
printed newsletter postings. Adolescents will also be recruited from a private practice.
Participants will have the option to complete an online or paper version of the survey. The
main outcome variable is adaptation to living with a KS diagnosis.
- INCLUSION CRITERIA:
1. Must have Klinefelter syndrome (47,XXY) by self-report.
2. Must be 14 years or older.
We found this trial at
1
site
9000 Rockville Pike
Bethesda, Maryland 20892
Bethesda, Maryland 20892
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