Parents With Bipolar Disorder: Relationship of Adaptation to Own Illness With Risk Perception and Coping With Perceived Risk to a Child
| Status: | Completed |
|---|---|
| Conditions: | Psychiatric, Bipolar Disorder |
| Therapuetic Areas: | Psychiatry / Psychology |
| Healthy: | No |
| Age Range: | 18 - 90 |
| Updated: | 4/17/2018 |
| Start Date: | October 23, 2009 |
| End Date: | June 7, 2013 |
Background:
- Bipolar disorder is a common mood disorder that affects 1% to 2% of the population.
Individuals with bipolar disorder tend to have periods of mania that are characterized
by extra energy, very poor judgment or unrealistic beliefs about their thoughts and
abilities, and an inability to complete thoughts and tasks; as well as major depressive
episodes. The range and frequency of symptoms in affected individuals can vary greatly.
Most individuals have cyclical symptoms and spend more time in a normal mood state than
in an overtly symptomatic state.
- Relatives of individuals with bipolar disorder have an increased risk for bipolar
disorder and other mood disorders. Currently, risk assessment for recurrence of a mood
disorder is based on family and medical histories; genetic testing has not proved
particularly useful to date for assessing risks of a mood disorder.
- Despite its prevalence, there is limited research on coping with bipolar illness. No
published studies have examined adaptation to living with bipolar disorder or risk for
bipolar disorder. More specifically, though a positive family history is the most
important known risk factor for bipolar disorder, there are no published studies about
response to the threat of future illness onset in children, risk modification efforts
undertaken by affected parents, or coping with the risk for illness in children.
Objectives:
- To examine parents appraisals of the impact and cause of bipolar disorder, and the
association with their perceived risk for bipolar illness in their child and how they
cope with their perception of risk to their child.
- To assess whether parents adaptation to their own illness is associated with coping with
perceived risk to their child.
- To describe parents coping strategies related to perceived risk in their children.
Eligibility:
- Men and women at least 18 years of age who have been diagnosed with bipolar disorder and
who have at least one biological child (30 years of age or younger). Participants must be a
primary caregiver for their children.
Design:
- Participants in this study will take an online survey and answer questions about disease
perceptions, coping strategies, and adapting to a diagnosis of bipolar disorder,
addressing issues such as the following:
- Assessing the threat of bipolar disorder and coping with one s own illness.
- Optimism/pessimism of the individual coping with the illness.
- Perception of risk to a child, and coping with the perceived risk.
- Data from this study will not be shared with the participants/respondents.
- Bipolar disorder is a common mood disorder that affects 1% to 2% of the population.
Individuals with bipolar disorder tend to have periods of mania that are characterized
by extra energy, very poor judgment or unrealistic beliefs about their thoughts and
abilities, and an inability to complete thoughts and tasks; as well as major depressive
episodes. The range and frequency of symptoms in affected individuals can vary greatly.
Most individuals have cyclical symptoms and spend more time in a normal mood state than
in an overtly symptomatic state.
- Relatives of individuals with bipolar disorder have an increased risk for bipolar
disorder and other mood disorders. Currently, risk assessment for recurrence of a mood
disorder is based on family and medical histories; genetic testing has not proved
particularly useful to date for assessing risks of a mood disorder.
- Despite its prevalence, there is limited research on coping with bipolar illness. No
published studies have examined adaptation to living with bipolar disorder or risk for
bipolar disorder. More specifically, though a positive family history is the most
important known risk factor for bipolar disorder, there are no published studies about
response to the threat of future illness onset in children, risk modification efforts
undertaken by affected parents, or coping with the risk for illness in children.
Objectives:
- To examine parents appraisals of the impact and cause of bipolar disorder, and the
association with their perceived risk for bipolar illness in their child and how they
cope with their perception of risk to their child.
- To assess whether parents adaptation to their own illness is associated with coping with
perceived risk to their child.
- To describe parents coping strategies related to perceived risk in their children.
Eligibility:
- Men and women at least 18 years of age who have been diagnosed with bipolar disorder and
who have at least one biological child (30 years of age or younger). Participants must be a
primary caregiver for their children.
Design:
- Participants in this study will take an online survey and answer questions about disease
perceptions, coping strategies, and adapting to a diagnosis of bipolar disorder,
addressing issues such as the following:
- Assessing the threat of bipolar disorder and coping with one s own illness.
- Optimism/pessimism of the individual coping with the illness.
- Perception of risk to a child, and coping with the perceived risk.
- Data from this study will not be shared with the participants/respondents.
Though psychiatric disorders are extremely common and individuals with bipolar disorder have
reproductive fitness approaching population rates, we know very little about the perceptions
and coping of parents with bipolar disorder related to their at-risk children. Bipolar
disorder is an etiologically-complex psychiatric disorder that is caused by a combination of
genetic and environmental risk factors. This study proposes to assess perceptions of parents
with bipolar disorder about their illness, response to illness threat, and concerns about
their children s risks. We then propose to assess whether those appraisals are associated
with the outcomes of coping strategies and adaption. As informed by the Transactional Theory
of Stress and Coping, we propose to use a web-based survey to examine disease perceptions,
coping strategies, and adaptation to the disorder. Respondents will be recruited through the
National Alliance of the Mentally Ill (NAMI). The study is cross-sectional and the survey is
composed of several valid and reliable scales to measure the constructs predicted to be
involved in adaptation. Open-ended questions are included to help interpret results from the
measures. Knowledge about parents perceptions and coping with their own illness and with risk
to children may lead to studies of potential coping interventions. Ultimately, downstream
studies may help to improve parents adaptation to their own condition and how successfully
they are able to manage concerns about perceived risks to their child.
reproductive fitness approaching population rates, we know very little about the perceptions
and coping of parents with bipolar disorder related to their at-risk children. Bipolar
disorder is an etiologically-complex psychiatric disorder that is caused by a combination of
genetic and environmental risk factors. This study proposes to assess perceptions of parents
with bipolar disorder about their illness, response to illness threat, and concerns about
their children s risks. We then propose to assess whether those appraisals are associated
with the outcomes of coping strategies and adaption. As informed by the Transactional Theory
of Stress and Coping, we propose to use a web-based survey to examine disease perceptions,
coping strategies, and adaptation to the disorder. Respondents will be recruited through the
National Alliance of the Mentally Ill (NAMI). The study is cross-sectional and the survey is
composed of several valid and reliable scales to measure the constructs predicted to be
involved in adaptation. Open-ended questions are included to help interpret results from the
measures. Knowledge about parents perceptions and coping with their own illness and with risk
to children may lead to studies of potential coping interventions. Ultimately, downstream
studies may help to improve parents adaptation to their own condition and how successfully
they are able to manage concerns about perceived risks to their child.
- INCLUSION CRITERIA:
- Have a diagnosis of bipolar disorder
- Be 18 years or older
- Be a biological parent of a child who is younger than 30 years old
- Be willing to participate in the survey
- The participant must be (or must have been) the primary caretaker for his or her
child.
EXCLUSION CRITERIA:
- A participant must meet inclusion criteria.
- A participant s child cannot have been diagnosed with a mood disorder or other serious
psychiatric disorder.
- A participant s child cannot have been adopted.
- The participant s child cannot be 30 years of age or older.
We found this trial at
2
sites
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9000 Rockville Pike
Bethesda, Maryland 20892
Bethesda, Maryland 20892
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