Studying Survivorship Care Plans in Head and Neck Cancer



Status:Recruiting
Conditions:Cancer, Cancer
Therapuetic Areas:Oncology
Healthy:No
Age Range:18 - Any
Updated:5/19/2017
Start Date:April 19, 2017
End Date:March 30, 2018
Contact:Deborah Allen, PhD, RN
Email:hutch.allen@duke.edu
Phone:919-681-4719

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Comparison of Enhanced Survivorship Care Plans in a Head and Neck Cancer Clinic to Standard of Care

The study will focus on survivorship care for head and neck cancer patients cared for within
Duke Cancer Center clinics. Standardized survivorship care plans (sSCP) are being
implemented based on the American Society for Clinical Oncology's criteria. These documents
provide a summary of treatment received, and list side effects and follow-up information
after cancer treatment. Taking advantage of this transition, the investigator will study
three groups of patients: (a) early survivors treated before the sSCP was implemented, (b)
early survivors treated after the sSCP was implemented, and (c) current patients who will
receive an individualized enhanced SCP (eSCP), which will include additional information
tailored to patient preferences. The investigators hypothesize that patients receiving
enhanced survivorship care plans will increase their knowledge regarding their health care
plan and wellness trajectory; increase their ability to identify the symptoms they most
likely can expect as a result of their cancer treatment; and be more likely to engage in
conversations with their PCP about healthy behaviors and screening guidelines.


Inclusion Criteria:

- Completed treatment for a head or neck cancer at Duke Cancer Center within 4 months
of consent OR

- Will complete treatment for a head and neck cancer at Duke Cancer Center within 3
weeks of consent AND

- Able to read and understand English

- Capable of giving informed consent

- Are at least age 18.

Exclusion Criteria:

- incompetent for interview (documented diagnosis of active psychosis or dementia) or
unable to provide informed consent as assessed by the interviewer; or too sick to
participate, as judged by a member of the research team
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Durham, North Carolina 27710
Phone: 919-681-4719
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