Mobile Self Management and Support for Adolescents and Young Adults With Cancer
| Status: | Completed |
|---|---|
| Conditions: | Cancer |
| Therapuetic Areas: | Oncology |
| Healthy: | No |
| Age Range: | 13 - 25 |
| Updated: | 10/13/2017 |
| Start Date: | May 23, 2017 |
| End Date: | August 10, 2017 |
This study is the user testing phase of a mobile application intervention which will be
designed to promote positive coping skills, illness resilience, and social support, and to
serve as a complement to patient-physician interactions in adolescents and young adults (AYA)
with sarcoma. User testing will be conducted with a prototype of the app. Participants will
be AYA ages 13-25 with sarcoma (N=16). Study participation involves the AYAs downloading and
using the app for 30 days. During the 30 days, participants will interact with the app by
inputting their current mood, receiving supportive feedback from the app, reading messages,
and doing brief activities (such as relaxation activities, etc.). Participants will also
participate in an online focus group focused around the user experience. Before and after the
30 days of user testing, participants will complete a few brief questionnaires about their
behavior, how their symptoms affect their life, and how they receive support from others.
These questions will take around 20 minutes to complete at each administration.
designed to promote positive coping skills, illness resilience, and social support, and to
serve as a complement to patient-physician interactions in adolescents and young adults (AYA)
with sarcoma. User testing will be conducted with a prototype of the app. Participants will
be AYA ages 13-25 with sarcoma (N=16). Study participation involves the AYAs downloading and
using the app for 30 days. During the 30 days, participants will interact with the app by
inputting their current mood, receiving supportive feedback from the app, reading messages,
and doing brief activities (such as relaxation activities, etc.). Participants will also
participate in an online focus group focused around the user experience. Before and after the
30 days of user testing, participants will complete a few brief questionnaires about their
behavior, how their symptoms affect their life, and how they receive support from others.
These questions will take around 20 minutes to complete at each administration.
Inclusion Criteria:
1. Parent or self-reported (for participants 18+ years old) physician diagnosis of
sarcoma
2. Daily use of a smartphone (iOS, Android, or Windows) or tablet
3. Current Facebook account that participant can use to participate in the focus group
(or, be willing to create a Facebook account for this purpose).
4. Able and willing to give informed assent and comply with study requirements
5. For patients aged 13-17 years, have one caregiver willing and able to participate in
the study
6. Able to read and speak English
Exclusion Criteria:
1. Patients that are not able to participate in the study due to their medical condition
and/or treatment regimen, as determined by the patients' treating oncologist in
conjunction with patients' family members
2. Inability to provide informed assent/permission/consent
3. Inability to read, speak, and understand English
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