Improving Symptom Self-management in Adolescents & Young Adults With Cancer



Status:Completed
Conditions:Cancer, Cancer
Therapuetic Areas:Oncology
Healthy:No
Age Range:15 - 29
Updated:12/24/2017
Start Date:November 1, 2016
End Date:October 25, 2017

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This study evaluates the use of the Computerized Symptom Capture Tool (C-SCAT), which creates
an image of the symptoms the participant is experiencing, for improving symptom
self-management in adolescents and young adults with cancer. In this one-group trial,
participants will complete the C-SCAT and use it during two clinic visits with their oncology
providers.

Unrelieved symptoms lead to poorer quality of life for adolescents and young adults (AYAs)
with cancer. Strategies are needed to help AYAs manage symptoms. The investigators developed
the Computerized Symptom Capture Tool (C-SCAT), a novel way to assess symptoms where AYAs
create a picture of their symptoms using images and text on an iPad app. The resulting image
shows symptoms/symptom clusters, priority symptoms and relationships between symptoms and has
potential to support AYA's symptom self-management. Facilitating the self-management process,
including self-efficacy, self-regulation behaviors, and patient-provider communication, is
essential for improving symptom outcomes.

Inclusion Criteria:

- 15 to 29 years of age with a diagnosis of cancer (primary, relapsed/recurrent,
refractory, progressive, or secondary malignancy) receiving myelosuppressive
chemotherapy.

- Completion of at least one cycle of therapy for cancer and anticipated to have at
least two additional cycles of myelosuppressive chemotherapy as part of the treatment
plan.

- Ability to speak and understand English as required to complete the C-SCAT and study
measures.

- Ability to use a tablet computer.

Exclusion Criteria:

- Cognitive and/or physical inabilities to complete the proposed study measures as
determined by self--report, parent report of minor, or medical chart.
We found this trial at
2
sites
2401 Gillham Rd
Kansas City, Missouri 64108
(816) 234-3000
Principal Investigator: Kristin Stegenga, PhD, MSN
Phone: 816-302-6841
Children's Mercy Hospital Children's Mercy Hospitals and Clinics continues redefining pediatric medicine throughout the Midwest...
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Kansas City, MO
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401 College Street
Richmond, Virginia 23298
(804) 828-0450
Principal Investigator: Suzanne W. Ameringer, Ph.D.
Phone: 804-628-7551
Virginia Commonwealth University Massey Cancer Center Founded in 1974, VCU Massey Cancer Center is a...
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Richmond, VA
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