ACCESS (Access for Cancer Caregivers for Education and Support for Shared Decision Making
| Status: | Recruiting |
|---|---|
| Conditions: | Cancer, Cancer, Chronic Pain |
| Therapuetic Areas: | Musculoskeletal, Oncology |
| Healthy: | No |
| Age Range: | 18 - Any |
| Updated: | 10/14/2018 |
| Start Date: | April 1, 2017 |
| End Date: | February 2022 |
| Contact: | Debra Oliver, PhD |
| Email: | oliverdr@missouri.edu |
| Phone: | 573-884-5301 |
ACCESS (Access for Cancer Caregivers for Education and Support for Shared Decision
The project will test the effect of educating and supporting caregivers of hospice cancer
patients on their active participation in shared decision making in the plan of care for
their patients.
patients on their active participation in shared decision making in the plan of care for
their patients.
This intervention will target education and emotional support to family caregivers of hospice
cancer patients for a shared decision making process in the hospice care plan meetings The
intervention ACCESS will consist of three components:
1: a Facebook group to provide the education and support; 2. web conferencing for family
members into the hospice interdisciplinary care plan meeting 3, a structured shared decision
making process to guide the team discussion.
Participants will be randomly assigned to one of three groups, usual care, Facebook only, and
Access.
The specific aims are to:
1. evaluate the effect of access on family caregiver anxiety, pain knowledge and patient
pain.
2. Evaluate the effect of Facebook groups as educational emotional support for caregivers
3. Assess staff and caregiver satisfaction with the shared decision making process.
cancer patients for a shared decision making process in the hospice care plan meetings The
intervention ACCESS will consist of three components:
1: a Facebook group to provide the education and support; 2. web conferencing for family
members into the hospice interdisciplinary care plan meeting 3, a structured shared decision
making process to guide the team discussion.
Participants will be randomly assigned to one of three groups, usual care, Facebook only, and
Access.
The specific aims are to:
1. evaluate the effect of access on family caregiver anxiety, pain knowledge and patient
pain.
2. Evaluate the effect of Facebook groups as educational emotional support for caregivers
3. Assess staff and caregiver satisfaction with the shared decision making process.
Inclusion Criteria:
- Enrolled in the participating hospice
- Over 18 years of age
- Has a diagnosis of cancer
- Willing to have a Facebook account and post at least 1x per week if in intervention
group
Exclusion Criteria:
- No one under the age of 18
- Enrolled in hospice agencies other than those participating in the study
- Unwilling to participate in social media
- A patient with a diagnosis other than cancer
- A patient with a life expectancy of less than 2 weeks
We found this trial at
2
sites
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