Adaptation of Skills Training Manuals for Patients Receiving Hematopoietic Stem Cell Transplantation and Their Caregivers

A two-part, qualitative descriptive design will be employed to systematically adapt the
Coping Together manuals based on recommendations of HSCT patients, CGs, dyads and clinicians
(for Phase 1 only). For this study, CG is defined as spouse, partner, family member, friend,
colleague, or neighbor who can, but do not necessarily live together, and provide
uncompensated care. A dyad is defined as a combination of a patient and their designated CG.
Dyads can review the Coping Together manuals individually or jointly, but will be interviewed
together.

Part 1 will capture diverse perspectives of HSCT patients, CGs, dyads and clinicians using
individual (patients, CGs, clinicians) and dyadic (dyads) interviews for the preliminary
adaptation of the Coping Together manuals.

Part 2 will explore the experiences of HSCT patients, CGs and dyads with HSCT CT, which will
be the HSCT-modified version of the Coping Together manuals, using individual (patients, CGs)
and dyadic (dyads) interviews to refine the HSCT CT manuals.

Inclusion Criteria:

Part 1

HSCT Patients

- Admission to the MSKCC Adult BMT service for an outpatient HSCT for a hematologic
malignancy

- HSCT procedure scheduled within two months of consent

- ≥18 years old

- Ability to read, speak and understand English

- Able to give written informed consent

- Physically and cognitively able to participate in the study as determined by the
investigators HSCT CGs

- ≥18 years old

- Ability to read, speak and understand English

- Able to give written informed consent

- Physically and cognitively able to participate in the study as determined by the
investigators

HSCT Dyads

- In addition to meeting the inclusion criteria for HSCT Patients and HSCT CGs above,
both parties must provide mutual agreement to participate as a dyad.

HSCT Clinicians

- Member of MSKCC BMT patient care team for at least one year

Part 2

HSCT Patients

- Same as Part 1 HSCT Patients HSCT CGs

- Same as Part 1 HSCT CGs HSCT Dyads

- Same as Part 1 HSCT Dyads

Exclusion Criteria:

Part 1 HSCT Patients

- Physically and cognitively unable to participate in the study as determined by the
investigators HSCT CGs

- Inability to complete role responsibilities 24 hours per day for at least 50% of time
(50 days)

- Physically and cognitively unable to participate in the study as determined by the
investigators HSCT Dyads

- Participants must not meet the exclusion criteria for HSCT Patients and HSCT CGs
above.

- Patients or CGs who are participating in this study as individuals HSCT Clinicians

- There are no exclusion criteria

Part 2 HSCT Patients

- Same as Part 1 HSCT Patients HSCT CGs

- Same as Part 1 HSCT CGs HSCT Dyads

- Same as Part 1 Dyads